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  • Oxford University Press (OUP)  (7)
  • Moons, Philip  (7)
  • 1
    Online Resource
    Online Resource
    Self-reported physical activities in patients after the Mustard or Senning operation: Comparison with healthy control subjects
    Oxford University Press (OUP) ; 2007
    In:  European Journal of Cardiovascular Nursing Vol. 6, No. 3 ( 2007-09), p. 247-251
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 6, No. 3 ( 2007-09), p. 247-251
    Abstract: Some decades ago, the Mustard or Senning operation was used to treat patients who were born with Transposition of the Great Arteries (TGA). Although life expectancy is good, previous studies have demonstrated limitations in exercise capacity. To what extent these limitations affect day-to-day functioning of the patients is not yet known. Aims We therefore investigated self-reported physical activities in patients after the Mustard or Senning operation, compared this with those of matched, healthy counterparts, and explored potential associations with age, gender and complexity of the TGA. Methods Seventy patients were matched with healthy controls. Habitual physical activity was measured using the Baecke questionnaire, resulting in a work, sports, and leisure time index, which ranges from 1 to 5. Results The median index scores of patients were 2.63 for work, 2.50 for sports; and 2.75 for leisure time. Only for sports, a significantly lower index score was found in patients. Furthermore, we found that older patients were less frequently engaged in sport activities (Spearman's rho=–0.38; p=0.02). Conclusion The results showed that the level of physical activities of patients after the Mustard and Senning operation is normal, except for sport activities. This indicates that patients after a Mustard or Senning operation tend to partake in all activities that they can comfortably perform.
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1016/J.EJCNURSE.2006.11.002
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2007
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  • 2
    Online Resource
    Online Resource
    Early physical training and psycho-educational intervention for patients undergoing coronary artery bypass grafting. The SheppHeart randomized 2 × 2 factorial clinical pilot trial
    Oxford University Press (OUP) ; 2016
    In:  European Journal of Cardiovascular Nursing Vol. 15, No. 6 ( 2016-10), p. 425-437
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 15, No. 6 ( 2016-10), p. 425-437
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1177/1474515115594524
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2016
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  • 3
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    Online Resource
    Sense of coherence and perceived physical health explain the better quality of life in adolescents with congenital heart disease
    Oxford University Press (OUP) ; 2013
    In:  European Journal of Cardiovascular Nursing Vol. 12, No. 5 ( 2013-10), p. 475-483
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 12, No. 5 ( 2013-10), p. 475-483
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1177/1474515113477955
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2013
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  • 4
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    Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system performance
    Oxford University Press (OUP) ; 2019
    In:  European Journal of Cardiovascular Nursing Vol. 18, No. 6 ( 2019-08), p. 465-473
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 18, No. 6 ( 2019-08), p. 465-473
    Abstract: Inter-country variation in patient-reported outcomes of adults with congenital heart disease has been observed. Country-specific characteristics may play a role. A previous study found an association between healthcare system performance and patient-reported outcomes. However, it remains unknown which specific components of the countries’ healthcare system performance are of importance for patient-reported outcomes. Aims: The aim of this study was to investigate the relationship between components of healthcare system performance and patient-reported outcomes in a large sample of adults with congenital heart disease. Methods: A total of 1591 adults with congenital heart disease (median age 34 years; 51% men; 32% simple, 48% moderate and 20% complex defects) from eight European countries were included in this cross-sectional study. The following patient-reported outcomes were measured: perceived physical and mental health, psychological distress, health behaviours and quality of life. The Euro Health Consumer Index 2015 and the Euro Heart Index 2016 were used as measures of healthcare system performance. General linear mixed models were conducted, adjusting for patient-specific variables and unmeasured country differences. Results: Health risk behaviours were associated with the Euro Health Consumer Index subdomains about patient rights and information, health outcomes and financing and access to pharmaceuticals. Perceived physical health was associated with the Euro Health Consumer Index subdomain about prevention of chronic diseases. Subscales of the Euro Heart Index were not associated with patient-reported outcomes. Conclusion: Several features of healthcare system performance are associated with perceived physical health and health risk behaviour in adults with congenital heart disease. Before recommendations for policy-makers and clinicians can be conducted, future research ought to investigate the impact of the healthcare system performance on outcomes further.
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1177/1474515119834484
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2019
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  • 5
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    Online Resource
    The Other Side of the Coin: Perceived Positive Effects of Illness in Women Following Acute Myocardial Infarction
    Oxford University Press (OUP) ; 2008
    In:  European Journal of Cardiovascular Nursing Vol. 7, No. 1 ( 2008-03), p. 80-87
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 7, No. 1 ( 2008-03), p. 80-87
    Abstract: Background: Although myocardial infarction (MI) is linked with both physical and psychological impairments, the possibility of patients also experiencing positive outcomes of MI has received far less attention in research and in clinical practice. In particular, this aspect has been under-investigated in older persons and in women. Aim: The purpose of this study was to investigate possible positive effects of illness, describe the patient characteristics and explore the nature and frequency of these effects in older women after MI. Methods: A cross-sectional postal survey was conducted in 145 women aged 62–80 years, three months to five years after MI. Self-reported socio-demographic and clinical data, in addition to data from medical records, were collected. A single-item question – “All in all, was there anything positive about experiencing an MI?” – was used to assess positive effects of illness, in addition to an open-ended question on the nature of possible positive effects. Results: A majority of the women (65%) reported positive effects from their MI experience. The women perceiving positive effects did not differ from those who did not on socio-demographic and clinical variables, except for being older ( p = 0.007) and less often readmitted ( p = 0.029). The groups did not differ significantly as to disease severity and time since MI. Four themes emerged from the open-ended questioning on the nature of perceived positive effects of the illness: Appreciating Life (55%), Getting Health Care (42%), Making Lifestyle Changes (36%), and Taking More Care of Self and Others (29%). Conclusions: The findings contribute to a more complete picture of psychosocial issues in women after MI by providing evidence that positive effects are often experienced despite physical limitations. Nurses may use this knowledge as a tool in patient education and communication, although further research is needed to determine the most optimal interventions for MI patients.
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1016/j.ejcnurse.2007.09.004
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2008
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  • 6
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    The challenge of non-adherence to early rehabilitation after coronary artery bypass surgery: Secondary results from the SheppHeartCABG trial
    Oxford University Press (OUP) ; 2020
    In:  European Journal of Cardiovascular Nursing Vol. 19, No. 3 ( 2020-03), p. 238-247
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 19, No. 3 ( 2020-03), p. 238-247
    Abstract: Attending and maintaining a cardiac rehabilitation programme is a challenge. Aims: The purpose of this study was to explore associations between non-adherence to early coronary artery bypass graft rehabilitation and sociodemographic and clinical baseline data. Methods: Coronary artery bypass graft patients were randomised 1:1 to either four weeks of comprehensive early rehabilitation or usual care. Outcomes were assessed at three time-points points: baseline, discharge and four weeks post-coronary artery bypass graft. Differences in sociodemographic and clinical baseline data in adherent versus non-adherent patients were tested using the Pearson χ 2 test for categorical variables. To test associations between non-adherence to exercise training and sociodemographic and clinical baseline data, multivariate logistic regression was used to estimate the odds ratio for in-hospital training and post-discharge training adjusted for age, sex and left ventricular ejection fraction. Results: Non-adherence to in-hospital versus post-discharge exercise training was 31% ( n=48) versus 53% ( n=81). Female non-adherence was 20% versus 70%. Non-adherence to in-hospital versus post-discharge mindfulness was 87% versus 70%. Male non-adherence to mindfulness was 85% versus 70%. Non-adherence to psycho-educational consultations was 3%, most of whom were men. Patients with university level education were more adherent to in-hospital exercise training than patients with lower educational level (odds ratio=3.14 (95% confidence interval; 1.16–8.51), p=0.02). Diabetic patients were more non-adherent to exercise training after discharge (3.74 (1.54–9.08), p=0.004) as were overweight patients (0.37 (0.17–0.80), p=0.01). Conclusions: This study demonstrated wide acceptance of psycho-educational consultations in post-coronary artery bypass graft patients. Adherence to physical rehabilitation was low especially after discharge from hospital and the opportunity to attend a mindfulness programme was not used.
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1177/1474515119883454
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2020
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  • 7
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    Online Resource
    What Does it Mean to Live with a Congenital Heart Disease? A Qualitative Study on the Lived Experiences of Adult Patients
    Oxford University Press (OUP) ; 2005
    In:  European Journal of Cardiovascular Nursing Vol. 4, No. 1 ( 2005-03), p. 3-10
    Details
    In: European Journal of Cardiovascular Nursing, Oxford University Press (OUP), Vol. 4, No. 1 ( 2005-03), p. 3-10
    Abstract: Background: Adults with congenital heart disease constitute a relatively new and continuously growing patient population. In addition to medical problems, patients perceive specific psychosocial concerns that influence their lived experiences and quality of life. Aim: This study aimed to explore the lived experiences of adult congenital heart disease patients. Methods: Unstructured, in-depth interviews were performed with 12 patients, aged between 25 and 40 years and suffering from moderate or severe heart defect (tetralogy of Fallot, transposition of the great arteries). Interviews were tape recorded and transcribed verbatim. Data were analyzed using Grounded Theory procedures. Results: Feeling different was the central theme of the patients’ lived experience, as they are faced with physical limitations and visible signs due to the heart defect. The experienced discordance between their world and healthy individuals’ world implies that patients struggle constantly with themselves and with their environment to be accepted as normal. The feeling of being different was influenced by attitudes of the environment, health care, and patient's personality. Moreover, it determined the perceived impact of the disease on the patient's daily life. Conclusion: This study shows that normalisation is the most important process when dealing with patients suffering from a congenital heart disease.
    Type of Medium: Online Resource
    ISSN: 1474-5151 , 1873-1953
    URL: Article
    DOI: 10.1016/j.ejcnurse.2004.12.003
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2005
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