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  • 1
    Online Resource
    Online Resource
    Clinical and psychosocial stress factors are associated with decline in physical activity over time in children with juvenile idiopathic arthritis
    Springer Science and Business Media LLC ; 2021
    In:  Pediatric Rheumatology Vol. 19, No. 1 ( 2021-12)
    Details
    In: Pediatric Rheumatology, Springer Science and Business Media LLC, Vol. 19, No. 1 ( 2021-12)
    Abstract: Physical activity (PA) patterns in children with juvenile idiopathic arthritis (JIA) over time are not well described. The aim of this study was to describe associations of physical activity (PA) with disease activity, function, pain, and psychosocial stress in the 2 years following diagnosis in an inception cohort of children with juvenile idiopathic arthritis (JIA). Methods In 82 children with newly diagnosed JIA, PA levels, prospectively determined at enrollment, 12 and 24 months using the Physical Activity Questionnaire for Children (PAQ-C) and Adolescents (PAQ-A) raw scores, were evaluated in relation to disease activity as reflected by arthritis activity (Juvenile Arthritis Disease Activity Score (JADAS-71)), function, pain, and psychosocial stresses using a linear mixed model approach. Results in the JIA cohort were compared to normative Pediatric Bone Mineral Accrual Study data derived from healthy children using z-scores. Results At enrollment, PA z-score levels of study participants were lower than those in the normative population (median z-score − 0.356; p  = 0.005). At enrollment, PA raw scores were negatively associated with the psychosocial domain of the Juvenile Arthritis Quality of Life Questionnaire ( r  = − 0.251; p  = 0.023). There was a significant decline in PAQ-C/A raw scores from baseline (median and IQR: 2.6, 1.4–3.1) to 24 months (median and IQR: 2.1, 1.4–2.7; p  = 0.003). The linear mixed-effect model showed that PAQ-C/A raw scores in children with JIA decreased as age, disease duration, and ESR increased. The PAQ-C/A raw scores of the participants was also negatively influenced by an increase in disease activity as measured by the JADAS-71 ( p   〈   0.001). Conclusion Canadian children with newly diagnosed JIA have lower PA levels than healthy children. The decline in PA levels over time was associated with disease activity and higher disease-specific psychosocial stress.
    Type of Medium: Online Resource
    ISSN: 1546-0096
    URL: Article
    DOI: 10.1186/s12969-021-00584-4
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 2279468-2
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  • 2
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    A proof-of-concept study on the impact of a chronic pain and physical activity training workshop for exercise professionals
    Walter de Gruyter GmbH ; 2021
    In:  Scandinavian Journal of Pain Vol. 21, No. 1 ( 2021-01-27), p. 112-120
    Details
    In: Scandinavian Journal of Pain, Walter de Gruyter GmbH, Vol. 21, No. 1 ( 2021-01-27), p. 112-120
    Abstract: Objectives Physical activity is essential for long-term chronic pain management, yet individuals struggle to participate. Exercise professionals, including fitness instructors, and personal trainers, are preferred delivery agents for education and instruction on chronic pain, physical activity, and strategies to use adherence-promoting behavioral skills. However, exercise professionals receive no relevant training during certification or continuing education opportunities to effectively support their participants living with chronic pain. Based on the ORBIT model for early pre-efficacy phases of development and testing of new behavioral treatments, the present Phase IIa proof-of-concept study was conducted. The purpose was to examine the impacts of a newly developed chronic pain and physical activity training workshop on psychosocial outcomes among exercise professionals. Outcomes included knowledge and attitudes regarding chronic pain, attitudes and beliefs about the relationship between pain and impairment, and self-efficacy to educate and instruct participants with chronic pain. Methods Forty-eight exercise professionals ( M age =44.4±11.0 years) participated in a three-hour, in-person workshop that was offered at one of four different locations. Participants completed pre- and post-workshop outcome assessment surveys. Results Mixed MANOVA results comparing time (pre- versus post-workshop) by workshop location (sites 1 to 4) illustrated a significant within-subjects time effect ( p 〈 0.001). All outcomes significantly improved from pre- to post-workshop ( p ′s 〈 0.001), demonstrating large effect sizes (partial eta-squared values ranging from 0.45 to 0.59). Conclusions Findings offer early phase preliminary support for the effectiveness of the chronic pain and physical activity training workshop for exercise professionals. Based on ORBIT model recommendations, findings warrant future phased testing via a pilot randomized clinical trial as well as testing for impacts that trained professionals have on activity adherence among their clients living with chronic pain. Eventual workshop adoption by exercise professional certification organizations would ensure widespread and sustainable access to qualified exercise professionals to help individuals engage in physical activity. By increasing the capacity of available exercise professionals to deliver effective support, active individuals could better manage their chronic pain and live well.
    Type of Medium: Online Resource
    ISSN: 1877-8860 , 1877-8879
    URL: Article
    DOI: 10.1515/sjpain-2020-0089
    Language: English
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2021
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  • 3
    Online Resource
    Online Resource
    Pain Intensity Variability and Its Relationship With Quality of Life in Youths With Juvenile Idiopathic Arthritis
    Wiley ; 2013
    In:  Arthritis Care & Research Vol. 65, No. 4 ( 2013-04), p. 563-570
    Details
    In: Arthritis Care & Research, Wiley, Vol. 65, No. 4 ( 2013-04), p. 563-570
    Type of Medium: Online Resource
    ISSN: 2151-464X
    URL: Article
    DOI: 10.1002/acr.21850
    RVK:
    XA 30325
    Language: English
    Publisher: Wiley
    Publication Date: 2013
    detail.hit.zdb_id: 2016713-1
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  • 4
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    Safety and feasibility of a home-based six week resistance training program in juvenile idiopathic arthritis
    Springer Science and Business Media LLC ; 2013
    In:  Pediatric Rheumatology Vol. 11, No. 1 ( 2013-12)
    Details
    In: Pediatric Rheumatology, Springer Science and Business Media LLC, Vol. 11, No. 1 ( 2013-12)
    Type of Medium: Online Resource
    ISSN: 1546-0096
    URL: Article
    DOI: 10.1186/1546-0096-11-46
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2013
    detail.hit.zdb_id: 2279468-2
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  • 5
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    Canadian surveillance study of complex regional pain syndrome in children
    Ovid Technologies (Wolters Kluwer Health) ; 2022
    In:  Pain Vol. 163, No. 6 ( 2022-06), p. 1060-1069
    Details
    In: Pain, Ovid Technologies (Wolters Kluwer Health), Vol. 163, No. 6 ( 2022-06), p. 1060-1069
    Abstract: This study describes the minimum incidence of pediatric complex regional pain syndrome (CRPS), clinical features, and treatments recommended by pediatricians and pain clinics in Canada. Participants in the Canadian Paediatric Surveillance Program reported new cases of CRPS aged 2 to 18 years monthly and completed a detailed case reporting questionnaire from September 2017 to August 2019. Descriptive analysis was completed, and the annual incidence of CRPS by sex and age groupings was estimated. A total of 198 cases were reported to the Canadian Paediatric Surveillance Program, and 168 (84.8%) met the case definition. The minimum Canadian incidence of CRPS is estimated at 1.14/100,000 (95% confidence interval 0.93-1.35/100,000) children per year. Incidence was highest among girls 12 years and older (3.10, 95% confidence interval 2.76-3.44/100,000). The mean age of CRPS diagnosis was 12.2 years (SD = 2.4), with the mean time from symptom onset to diagnosis of 5.6 months (SD = 9.9) and no known inciting event for 19.6% of cases. Most cases had lower limb involvement (79.8%). Nonsteroidal anti-inflammatory drugs (82.7%) and acetaminophen (66.0%) were prescribed more commonly than antiepileptic drugs (52.3%) and antidepressants (32.0%). Referrals most commonly included physical therapy (83.3%) and multidisciplinary pain clinics (72.6%); a small number of patients withdrew from treatment because of pain exacerbation (5.3%). Pain education was recommended for only 65.6% of cases. Treatment variability highlights the need for empiric data to support treatment of pediatric CRPS and development of treatment consensus guidelines.
    Type of Medium: Online Resource
    ISSN: 0304-3959 , 1872-6623
    URL: Article
    DOI: 10.1097/j.pain.0000000000002482
    Language: English
    Publisher: Ovid Technologies (Wolters Kluwer Health)
    Publication Date: 2022
    detail.hit.zdb_id: 1494115-6
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  • 6
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    Moving Forward with Physical Activity: Self-Management of Chronic Pain among Women
    Elsevier BV ; 2018
    In:  Women's Health Issues Vol. 28, No. 2 ( 2018-03), p. 113-116
    Details
    In: Women's Health Issues, Elsevier BV, Vol. 28, No. 2 ( 2018-03), p. 113-116
    Type of Medium: Online Resource
    ISSN: 1049-3867
    URL: Article
    DOI: 10.1016/j.whi.2017.12.006
    Language: English
    Publisher: Elsevier BV
    Publication Date: 2018
    detail.hit.zdb_id: 2011979-3
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  • 7
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    Development and clinical feasibility testing of the Pain Treatment Planning Questionnaire
    Walter de Gruyter GmbH ; 2020
    In:  The Journal of Haemophilia Practice Vol. 7, No. 1 ( 2020-01-01), p. 12-24
    Details
    In: The Journal of Haemophilia Practice, Walter de Gruyter GmbH, Vol. 7, No. 1 ( 2020-01-01), p. 12-24
    Abstract: Chronic pain is common in people with bleeding disorders and can complicate clinical management, impair quality of life, and contribute to disability. People living with bleeding disorders often seek advice on pain management from the bleeding disorder treatment team; however, lack of condition-specific assessment tools to guide clinical communication about pain are a barrier to care. Aims To develop and examine the clinical feasibility of a patient-reported outcome (PRO) tool designed to facilitate pain assessment and support clinical communication about pain for adults attending outpatient bleeding disorder clinics. Methods Tool development involved patient cognitive interviews and item refinement by a multidisciplinary clinician and patient working group. Clinical feasibility of the tool was evaluated with a survey of a small clinical sample in an outpatient bleeding disorder clinic. The Pain Treatment Planning Questionnaire (PTPQ) contains 28 items on the pain experience and treatments used to manage or prevent pain. Results Participants completing the feasibility testing (n=42, 62% male) reported mild mean pain scores (usual pain μ=2.4, SD=2.0) with the majority (57.1%) reporting persistent pain in the past 30 days. Median PTPQ completion time was five to seven minutes and mean item response rate was 95.2%. The majority (95.2%) of participants found the questionnaire easy to understand, reported no difficulty understanding items, and recommended no changes to the questionnaire. Conclusions Preliminary testing among a small sample in a clinical setting suggests that the PTPQ is a clinically feasible, acceptable, condition-specific PRO pain assessment tool for adult patients with bleeding disorders. Further testing is required to determine if the PTPQ affects treatment decision-making and patient outcomes.
    Type of Medium: Online Resource
    ISSN: 2055-3390
    URL: Article
    DOI: 10.17225/jhp00155
    Language: English
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2020
    detail.hit.zdb_id: 2977728-8
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  • 8
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    Procedural Pain Management for Children Receiving Physiotherapy
    University of Toronto Press Inc. (UTPress) ; 2010
    In:  Physiotherapy Canada Vol. 62, No. 4 ( 2010-10), p. 327-337
    Details
    In: Physiotherapy Canada, University of Toronto Press Inc. (UTPress), Vol. 62, No. 4 ( 2010-10), p. 327-337
    Abstract: Purpose: This article provides an overview of literature relevant to the prevention and relief of pain and distress during physiotherapy procedures, with guidance for physiotherapists treating children. Summary of key points: Physiotherapists are generally well trained in assessing and managing pain as a symptom of injury or disease, but there is a need to improve the identification and management of pain produced by physiotherapy procedures such as stretching and splinting. In contrast to physiotherapy, other health care disciplines, such as dentistry, nursing, paediatrics, emergency medicine, and paediatric psychology, produce extensive literature on painful procedures. Procedural pain in children is particularly important because it can lead to later fear and avoidance of necessary medical care. Recommendations: We emphasize the need for physiotherapists to recognize procedural pain and fear in the course of treatment using verbal, nonverbal, and contextual cues. We present many methods that physiotherapists can use to prevent or relieve procedural pain and fear in paediatric patients and provide an example of a simple, integrated plan for prevention and relief of distress induced by painful procedures.
    Type of Medium: Online Resource
    ISSN: 0300-0508 , 1708-8313
    URL: Article
    DOI: 10.3138/physio.62.4.327
    Language: English
    Publisher: University of Toronto Press Inc. (UTPress)
    Publication Date: 2010
    detail.hit.zdb_id: 2236320-8
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  • 9
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    Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care
    Walter de Gruyter GmbH ; 2020
    In:  The Journal of Haemophilia Practice Vol. 7, No. 1 ( 2020-01-01), p. 110-120
    Details
    In: The Journal of Haemophilia Practice, Walter de Gruyter GmbH, Vol. 7, No. 1 ( 2020-01-01), p. 110-120
    Abstract: Pain associated with bleeding disorders has been demonstrated to have an impact on patients’ and families’ quality of life. Both acute and chronic pain are common experiences and require attention by professionals working in haemophilia treatment centres (HTCs). The benefits of psychological pain management strategies such as cognitive behaviour therapy and self-management skills training are well documented; however, it is not well understood how Canadian social workers involved in haemophilia care perceive and provide pain management support to patients. Aims To explore the current understanding of pain management and practice as well as the education needs of members of Canadian Social Workers in Hemophilia Care (CSWHC). Method Twelve semi-structured qualitative interviews were conducted with members of CSWHC. Transcribed interviews were coded with NVivo software and thematically analysed. Results The four key themes reflecting the experiences of social workers are: 1) Limited comprehension of key issues related to pain; 2) Conditioning to push through pain; 3) Expanding pain knowledge to enhance practice; 4) How we practice social work and choose to step in. Conclusion The current practice of CSWHC members aligns with literature in three main areas including assessment, instrumental services, and counselling. Social workers support the development of pain education and practical resources for patients with haemophilia who experience pain. While formal education, advocacy, and policy development of pain assessment and management are recognised, these areas require further research and development.
    Type of Medium: Online Resource
    ISSN: 2055-3390
    URL: Article
    DOI: 10.17225/jhp00163
    Language: English
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2020
    detail.hit.zdb_id: 2977728-8
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  • 10
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    Family Presence in Long-Term Care During the COVID-19 Pandemic: Call to Action for Policy, Practice, and Research
    Canadian Geriatrics Society ; 2020
    In:  Canadian Geriatrics Journal Vol. 23, No. 4 ( 2020-11-23), p. 335-339
    Details
    In: Canadian Geriatrics Journal, Canadian Geriatrics Society, Vol. 23, No. 4 ( 2020-11-23), p. 335-339
    Abstract: Family presence in long-term care (LTC) homes is crucial for meeting the health, psychosocial, and practical needs of residents. Initially during the COVID-19 pandemic, visitation restrictions essentially locked-out families as public health orders prioritized prevention of harm from spread of infection. Although telephone and technology-assisted communication with families was encouraged, many residents were unable to participate. The outcry from families on the injustice of disruption of family units and emerging reports of harms arising from prolonged restrictions highlight the need for provincial and organizational policies to recognize the impact of resident and family separation on well-being. In this commentary we describe family caregiving, review the impact of visitation restrictions on residents, families, and LTC staff, and provide a resident- and family-oriented perspective on policy implications that challenge the outdated notion that extreme restrictions to family presence protect resident health.
    Type of Medium: Online Resource
    ISSN: 1925-8348
    URL: Article
    DOI: 10.5770/cgj.23.476
    Language: Unknown
    Publisher: Canadian Geriatrics Society
    Publication Date: 2020
    detail.hit.zdb_id: 3053637-6
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