In:
Psycho-Oncologie, Computers, Materials and Continua (Tech Science Press), Vol. 12, No. 4 ( 2018-12), p. 303-310
Abstract:
In France advance directive (ADs) legislation has been in place since 2005, strengthened in 2016, however a minority of people made the choice to write them. In the context of critical illness, what about their content? What information relating to their care or their end of life do they write there? The aim of this qualitative research is to analyze the content of the ADs written by patients with hematological malignancies in order to better understand how they are put into practice. The study was conducted in two steps over a total duration of 8 years and 2 months: a preliminary work retrospective and monocentric and a second step of prospective and multicenter in 6 French sites. The qualitative analysis of the ADs was carried out by two people: a senior hematologist and a researcher in Humanities and Social Sciences. A thematic analysis was done with identification of the main messages and keywords. The 35 ADs collected were used in three different ways by patients. The appropriation is either 1) purely legal with law articles cited in extenso without personalization of the writing, or 2) to focus on medical acts and treatments desired or refused and 3) to transmit personal messages for their loved ones such as their confidence, their love or funeral arrangements. In conclusion, our results show that the writing of ADs is not limited to end-of-life patients and that beyond the transmission of information about medical acts or treatments, patients use them to write personal messages to their loved ones. This new role of ADs could foster intrafamilial communication even if it is not their primary purpose. Moving ADs to a broader concept, such as advance care planning, could be a way to rethink the tool and reach more people.
Type of Medium:
Online Resource
ISSN:
1778-3798
,
1778-381X
DOI:
10.3166/pson-2019-0072
Language:
French
Publisher:
Computers, Materials and Continua (Tech Science Press)
Publication Date:
2018
detail.hit.zdb_id:
2379004-0
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