In:
Journal of Health and Rehabilitation Research, Link Medical Institute, Vol. 4, No. 1 ( 2024-01-27), p. 285-290
Abstract:
Background: The objective of this qualitative study was to provide a comprehensive review of the experiences and related factors of parents with children between the ages of three and six who are diagnosed with cerebral palsy. The research examined the perspectives of guardians about the physical and/or occupational therapy provided to their child at a rehabilitation center. The current body of rehabilitation literature places emphasis on prioritizing functional objectives for children with special needs, as well as using a collaborative approach to goal-setting that is rooted in the concepts of family-centered care delivery. Objective: To find out parents' experiences with cerebral palsy (CP) child for goals and goal setting. Methodology: A qualitative study was conducted with 10 parents of children with cerebral palsy at NIRM hospital Islamabad. An inductive thematic analysis was used to identify prominent themes. Results: Three themes are revealed by analysis that represent goals useful for the parents and gave an insight into parents' experiences with processes of goal-setting in physical therapy: The themes acquired as per the data received through interview guide were as follows: 1) Physical changes of CP patient 2) Social changes (Community based) of CP patient.3) Family professional partnership 4) Therapists perspective for CP child. Conclusion: Positive parental experiences with their child's intervention led to the following outcomes: more time spent with the child, a broader perspective, increased community involvement, the opportunity to share personal experiences with other parents, improved goal setting skills among parents, and the ability to track progress. Furthermore, parents emphasize the necessity of developing trusting connections with their children in order to have open talks about the required amount of participation in goal setting, the family's values, and unique circumstances.
Type of Medium:
Online Resource
ISSN:
2791-156X
DOI:
10.61919/jhrr.v4i1.400
Language:
Unknown
Publisher:
Link Medical Institute
Publication Date:
2024
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