In:
Journal of Pediatric Gastroenterology and Nutrition, Wiley, Vol. 78, No. 1 ( 2024-01), p. 105-112
Abstract:
Coeliac disease is a chronic disease associated with a negative impact on the health‐related quality of life of children and their families. Health‐related quality of life is a multidimensional concept that describes the patient's perception of their well‐being. The use of generic (PedsQL) and disease‐specific (CDDUX) questionnaires may detect discrepancies in the results which can be explained by the different sensitivity of the instruments to measure the real‐life problems of children and adolescents with celiac disease. What is New The health‐related quality of life in children, adolescents and their parents did not significantly differ after 10 years from diagnosis, compared with 5 years earlier, with scores corresponding to neutral (CDDUX) and good‐very good (PedsQL) quality of life. In this study, the CDDUX is confirmed to be a simple, rapid, but complete tool to assess changes in quality of life over time in children and adolescents with coeliac disease, even on a long‐term perspective. The children's CDDUX Diet health domain, that is, how the child feels about compliance to gluten‐free diet restrictions, was negatively associated with a poor adherence to a gluten‐free diet, even 10 years after diagnosis.
Type of Medium:
Online Resource
ISSN:
0277-2116
,
1536-4801
Language:
English
Publisher:
Wiley
Publication Date:
2024
detail.hit.zdb_id:
2078835-6
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