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  • 1
    Online Resource
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    Special Reviewers
    Wiley ; 2005
    In:  Journal of Marriage and Family Vol. 67, No. 5 ( 2005-12), p. 1355-1358
    Details
    In: Journal of Marriage and Family, Wiley, Vol. 67, No. 5 ( 2005-12), p. 1355-1358
    Type of Medium: Online Resource
    ISSN: 0022-2445 , 1741-3737
    URL: Issue
    URL: Article
    DOI: 10.1111/jomf.2005.67.issue-5
    DOI: 10.1111/j.1741-3737.2005.00226.x
    RVK:
    MN 1000
    Language: English
    Publisher: Wiley
    Publication Date: 2005
    detail.hit.zdb_id: 218322-5
    detail.hit.zdb_id: 2066605-6
    SSG: 3,4
    SSG: 5,2
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  • 2
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    The association between platelet transfusions and bleeding in critically ill patients with thrombocytopenia
    Elsevier BV ; 2017
    In:  Research and Practice in Thrombosis and Haemostasis Vol. 1, No. 1 ( 2017-07), p. 103-111
    Details
    In: Research and Practice in Thrombosis and Haemostasis, Elsevier BV, Vol. 1, No. 1 ( 2017-07), p. 103-111
    Type of Medium: Online Resource
    ISSN: 2475-0379
    URL: Article
    DOI: 10.1002/rth2.12004
    Language: English
    Publisher: Elsevier BV
    Publication Date: 2017
    detail.hit.zdb_id: 2901840-7
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  • 3
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    Canadian Rheumatology Association Living Guidelines for the Pharmacological Management of Rheumatoid Arthritis With Disease-Modifying Antirheumatic Drugs
    The Journal of Rheumatology ; 2022
    In:  The Journal of Rheumatology Vol. 49, No. 10 ( 2022-10), p. 1092-1099
    Details
    In: The Journal of Rheumatology, The Journal of Rheumatology, Vol. 49, No. 10 ( 2022-10), p. 1092-1099
    Abstract: To provide the initial installment of a living guideline that will provide up-to-date guidance on the pharmacological management of patients with rheumatoid arthritis (RA) in Canada. Methods The Canadian Rheumatology Association (CRA) formed a multidisciplinary panel composed of rheumatologists, researchers, methodologists, and patients. In this first installment of our living guideline, the panel developed a recommendation for the tapering of biologic and targeted synthetic disease-modifying antirheumatic drug (b/ts DMARD) therapy in patients in sustained remission using the GRADE (Grading of Recommendations Assessment, Development, and Evaluation) approach, including a health equity framework developed for the Canadian RA population. The recommendation was adapted from a living guideline of the Australia & New Zealand Musculoskeletal Clinical Trials Network. Results In people with RA who are in sustained low disease activity or remission for at least 6 months, we suggest offering stepwise reduction in the dose of b/tsDMARD without discontinuation, in the context of a shared decision, provided patients are able to rapidly access rheumatology care and reestablish their medications if needed. In patients where rapid access to care or reestablishing access to medications is challenging, we conditionally recommend against tapering. A patient decision aid was developed to complement the recommendation. Conclusion This living guideline will provide contemporary RA management recommendations for Canadian practice. New recommendations will be added over time and updated, with the latest recommendation, evidence summaries, and Evidence to Decision summaries available through the CRA website ( www.rheum.ca ).
    Type of Medium: Online Resource
    ISSN: 0315-162X , 1499-2752
    URL: Article
    DOI: 10.3899/jrheum.220209
    RVK:
    XA 10000
    Language: English
    Publisher: The Journal of Rheumatology
    Publication Date: 2022
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  • 4
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    Canadian Rheumatology Association Recommendation for the Use of COVID-19 Vaccination for Patients With Autoimmune Rheumatic Diseases
    The Journal of Rheumatology ; 2021
    In:  The Journal of Rheumatology Vol. 48, No. 8 ( 2021-08), p. 1330-1339
    Details
    In: The Journal of Rheumatology, The Journal of Rheumatology, Vol. 48, No. 8 ( 2021-08), p. 1330-1339
    Abstract: To develop guidance on the use of coronavirus disease 2019 (COVID-19) vaccines in patients with autoimmune rheumatic diseases (ARD). Methods The Canadian Rheumatology Association (CRA) formed a multidisciplinary panel including rheumatologists, researchers, methodologists, vaccine experts, and patients. The panel used the GRADE (Grading of Recommendations Assessment, Development, and Evaluation) approach. Outcomes were prioritized according to their importance for patients and clinicians. Evidence from the COVID-19 clinical trials was summarized. Indirect evidence for non–COVID-19 vaccines in ARD was also considered. The GRADE evidence-to-decision (EtD) framework was used to develop a recommendation for the use of the 4 COVID-19 vaccines approved in Canada as of March 25, 2021 (BNT162b2, mRNA-1273, ChAdOx1, and Ad26.COV2.S), over 4 virtual panel meetings. Results The CRA guideline panel suggests using COVID-19 vaccination in persons with ARD. The panel unanimously agreed that for the majority of patients, the potential health benefits of vaccination outweigh the potential harms in people with ARDs. The recommendation was graded as conditional because of low or very low certainty of the evidence on the effects in the population of interest, primarily due to indirectness and imprecise effect estimates. The panel felt strongly that persons with autoimmune rheumatic diseases who meet local eligibility should not be required to take additional steps compared to people without ARDs to obtain their vaccination. Guidance on medications, implementation, monitoring of vaccine uptake, and research priorities are also provided. Conclusion This recommendation will be updated over time as new evidence emerges, with the latest recommendation, evidence summaries, and EtD available on the CRA website.
    Type of Medium: Online Resource
    ISSN: 0315-162X , 1499-2752
    URL: Article
    DOI: 10.3899/jrheum.210288
    RVK:
    XA 10000
    Language: English
    Publisher: The Journal of Rheumatology
    Publication Date: 2021
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  • 5
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    Editors-in-chief perceptions of patients as (co) authors on publications and the acceptability of ICMJE authorship criteria: a cross-sectional survey
    Springer Science and Business Media LLC ; 2021
    In:  Research Involvement and Engagement Vol. 7, No. 1 ( 2021-12)
    Details
    In: Research Involvement and Engagement, Springer Science and Business Media LLC, Vol. 7, No. 1 ( 2021-12)
    Abstract: Access to, and awareness of, appropriate authorship criteria is an important right for patient partners. Our objective was to measure medical journal Editors-in-Chief’ perceptions of including patients as (co-)authors on research publications and to measure their views on the application of the ICMJE (International Committee of Medical Journals Editors) authorship criteria to patient partners. Methods We conducted a cross-sectional survey co-developed with a patient partner. Editors-in-Chief of English-language medical journals were identified via a random sample of journals obtained from the Scopus source list. The key outcome measures were whether Editors-in-Chief believed: 1) patient partners should be (co-)authors and; 2) whether they felt the ICMJE criteria for authorship required modification for use with patient partners. We also measured Editors-in-Chief description of how their journal’s operations incorporate patient partner perspectives. Results One hundred twelve Editors-in-Chief responded to our survey (18.7% response rate; 66.69% male). Participants were able to skip any questions they did not want to answer, so there is missing data for some items. 69.2% ( N  = 74) of Editors-in-Chief indicated it was acceptable for patient partners to be authors or co-authors on published biomedical research articles, with the remaining 30.8% ( N  = 33) indicating this would not be appropriate. When asked specifically about the ICMJE authorship criteria, and whether this should be revised to be more inclusive of patient partners, 35.8% ( N  = 39) indicated it should be revised, 35.8% ( N  = 39) indicated it should not be revised, and 28.4% ( N  = 31) were unsure about a revision. 74.1% ( N  = 80) of Editors-in-Chief did not think patients should be required to have an academic affiliation to published while 16.7% ( N  = 18) and 9.3% ( N  = 10) indicated they should or were unsure. 3.6% ( N  = 4) of Editors-in-Chief indicated their journal had a policy that specifies how patients or patient partners should be considered as authors. Conclusions Our findings highlight gaps that may act as barriers to patient partner participation in research. A key implication is the need for education and for consensus building within the biomedical community to establish processes that will facilitate equitable patient partners inclusion.
    Type of Medium: Online Resource
    ISSN: 2056-7529
    URL: Article
    DOI: 10.1186/s40900-021-00290-1
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 2834246-X
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  • 6
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    Reflections on patient engagement by patient partners: how it can go wrong
    Springer Science and Business Media LLC ; 2023
    In:  Research Involvement and Engagement Vol. 9, No. 1 ( 2023-06-12)
    Details
    In: Research Involvement and Engagement, Springer Science and Business Media LLC, Vol. 9, No. 1 ( 2023-06-12)
    Abstract: As six patient partners in Canada, we aim to contribute to learning and to provide an opportunity to reflect on patient engagement (PE) in research and healthcare environments. Patient engagement refers to “meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation” with patient partners as members of teams, rather than participants in research or clinical care. While much has been written about the benefits of patient engagement, it is important to accurately document and share what we term ‘patient engagement gone wrong.’ These examples have been anonymized and presented as four statements: patient partners as a check mark, unconscious bias towards patient partners, lack of support to fully include patient partners, and lack of recognizing the vulnerability of patient partners. The examples provided are intended to demonstrate that patient engagement gone wrong is more common than discussed openly, and to simply bring this to light. This article is not intending to lay blame, rather to evolve and improve patient engagement initiatives. We ask those who interact with patient partners to reflect so we can all work towards improving patient engagement. Lean into the discomfort with these conversations as that is the only way to change these all too recognizable examples, and which will lead to better project outcomes and experiences for all team members.
    Type of Medium: Online Resource
    ISSN: 2056-7529
    URL: Article
    DOI: 10.1186/s40900-023-00454-1
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2023
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  • 7
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    Identifying potential barriers and solutions to patient partner compensation (payment) in research
    Springer Science and Business Media LLC ; 2022
    In:  Research Involvement and Engagement Vol. 8, No. 1 ( 2022-12)
    Details
    In: Research Involvement and Engagement, Springer Science and Business Media LLC, Vol. 8, No. 1 ( 2022-12)
    Abstract: Research that engages patients on the research team is often supported by grant funding from different organizations and, in some cases, principal investigators (who control the grant funding) provide patient partners with compensation (or payment) for their contributions. However, we have noted a gap in resources that identify and address barriers to compensating patient partners (no matter the size, degree or length of their engagement). In this paper, we present thoughts and experiences related to barriers to compensating patient partners with the goal of helping individuals identify and find solutions to these obstacles. Based on our experiences as individuals who live with chronic conditions and are patient partners, and those who are researchers who engage patient partners, we have identified eight barriers to compensating patient partners. We discuss each of these barriers: lack of awareness about patient partnership, institutional inflexibility, policy guidance from funders, compensation not prioritized in research budgets, leadership hesitancy to create a new system, culture of research teams, preconceived beliefs about the skills and abilities of patient partners, and expectations placed on patient partners. We demonstrate these barriers with real life examples and we offer some solutions. To further demonstrate these barriers, we ask readers to reflect on some scenarios that present realistic parallel situations to those that patient partners face. The intention is to illustrate, through empathy or putting yourself in someone else’s shoes, how we might all do better with respect to institutional barriers related to patient partner compensation. Last, we issue a call to action to share resources and identify actions to overcome these barriers from which we will create an online resource repository.
    Type of Medium: Online Resource
    ISSN: 2056-7529
    URL: Article
    DOI: 10.1186/s40900-022-00341-1
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2022
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  • 8
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    Time‐trends and treatment gaps in the antithrombotic management of patients with atrial fibrillation after percutaneous coronary intervention: Insights from the CHUM AF‐STENT Registry
    Wiley ; 2020
    In:  Clinical Cardiology Vol. 43, No. 3 ( 2020-03), p. 216-221
    Details
    In: Clinical Cardiology, Wiley, Vol. 43, No. 3 ( 2020-03), p. 216-221
    Abstract: The management of atrial fibrillation and flutter (AF) patients undergoing percutaneous coronary intervention (PCI) has undergone a rapid recent evolution. In 2016, the Canadian Cardiovascular Society (CCS) published expert recommendations to help guide clinicians in balancing bleeding and thrombotic risks in these patients. Hypothesis Antithrombotic regimen prescriptions for AF patients undergoing PCI evolved after the publication of the 2016 CCS AF guidelines. Methods A prospective cohort of AF patients undergoing PCI with placement of a coronary stent from a single tertiary academic center was analyzed for the recommended antithrombotic regimen at discharge. Prescribing behavior was compared between three time periods (Cohort A [2010‐2011]; Cohort B [2014‐2015] ; Cohort C [2017]) using the χ 2 test. In addition, antithrombotic management in Cohorts B and C were compared to guideline‐recommended therapy. Results A total of 459 patients with AF undergoing PCI were identified. Clinical and procedural characteristics were similar between cohorts, with the exception of an increase in drug‐eluting stent (DES) use over time ( P 〈  .01). Overall, the rate of oral anticoagulation (OAC) increased over time ( P 〈  .01), associated with an increase in nonvitamin K OAC prescription ( P 〈  .01) and a concomitant decrease in vitamin K antagonist prescription ( P 〈  .01). Despite this, the overall rate of anticoagulation remains below what would be predicted with perfect guideline compliance (75% vs 94%, P 〈  .01). Conclusion There has been a dramatic shift in clinical practice for AF patients requiring PCI, with increases in prescription of OAC even in the context of an increase in the use of DES. However, room for further practice optimization still exists.
    Type of Medium: Online Resource
    ISSN: 0160-9289 , 1932-8737
    URL: Issue
    URL: Article
    DOI: 10.1002/clc.v43.3
    DOI: 10.1002/clc.23316
    Language: English
    Publisher: Wiley
    Publication Date: 2020
    detail.hit.zdb_id: 2048223-1
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  • 9
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    Trends of use and factors that determine the choice of oral anticoagulants in women and men with atrial fibrillation
    Wiley ; 2022
    In:  Pharmacology Research & Perspectives Vol. 10, No. 6 ( 2022-12)
    Details
    In: Pharmacology Research & Perspectives, Wiley, Vol. 10, No. 6 ( 2022-12)
    Abstract: The aim was to identify sex‐specific factors linked with oral anticoagulant initiation in a cohort of patients with atrial fibrillation using administrative data from Quebec (Canada) between 2014 and 2017. Cohort entry defined as new users, that is, no claims in last 12 months, a cohort of 32 050 patients was stratified in two groups, that is, women and men. Multivariable regression models were used to identify factors of initiations for low‐ and standard‐dose direct oral anticoagulants (DOACs) versus warfarin, and low‐ versus standard‐dose DOACs. In both sexes, warfarin initiation decreased and DOAC initiation increased, with year of initiation as major factors of DOACs use. In 2017, the increase was of 2‐ to 4‐fold and 3‐ to 8‐fold for low‐ and standard‐dose DOACs (vs. warfarin), respectively. The proportion of patients starting on a low‐dose DOAC was higher in women than men. Older age for both sexes and CHADS 2 score ≥2 (only women) were major factors of low‐dose dabigatran and rivaroxaban versus warfarin use. The only significant factor of standard‐dose DOAC versus warfarin use was age of 65–79 for women or men treated with apixaban by 1.8‐ and 1.4‐fold, respectively. Factors that made women and men less likely to receive a standard‐dose DOAC versus warfarin were higher CHADS 2 (for dabigatran and rivaroxaban), HAS‐BLED and frailty scores, prior coronary disease, major bleeding, and chronic kidney disease (CKD) status. The choice of a low‐ versus standard‐dose DOAC was mainly driven by age and CKD, and higher CHADS 2 score (for dabigatran and apixaban) for both sexes.
    Type of Medium: Online Resource
    ISSN: 2052-1707 , 2052-1707
    URL: Issue
    URL: Article
    DOI: 10.1002/prp2.v10.6
    DOI: 10.1002/prp2.1012
    Language: English
    Publisher: Wiley
    Publication Date: 2022
    detail.hit.zdb_id: 2740389-0
    SSG: 15,3
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  • 10
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    “I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis
    Springer Science and Business Media LLC ; 2023
    In:  Pediatric Rheumatology Vol. 21, No. 1 ( 2023-07-26)
    Details
    In: Pediatric Rheumatology, Springer Science and Business Media LLC, Vol. 21, No. 1 ( 2023-07-26)
    Abstract: Juvenile idiopathic arthritis (JIA) is a common pediatric rheumatic condition and is associated with symptoms such as joint pain that can negatively impact health-related quality of life. To effectively manage pain in JIA, young people, their families, and health care providers (HCPs) should be supported to discuss pain management options and make a shared decision. However, pain is often under-recognized, and pain management discussions are not optimal. No studies have explored decision-making needs for pain management in JIA using a shared decision making (SDM) model. We sought to explore families’ decision-making needs with respect to pain management among young people with JIA, parents/caregivers, and HCPs. Methods We conducted semi-structured virtual or face-to-face individual interviews with young people with JIA 8–18 years of age, parents/caregivers and HCPs using a qualitative descriptive study design. We recruited participants online across Canada and the United States, from a hospital and from a quality improvement network. We used interview guides based on the Ottawa Decision Support Framework to assess decision-making needs. We audiotaped, transcribed verbatim and analyzed interviews using thematic analysis. Results A total of 12 young people ( n  = 6 children and n  = 6 adolescents), 13 parents/caregivers and 11 HCPs participated in interviews. Pediatric HCPs were comprised of rheumatologists ( n  = 4), physical therapists ( n  = 3), rheumatology nurses ( n  = 2) and occupational therapists ( n  = 2). The following themes were identified: (1) need to assess pain in an accurate manner; (2) need to address pain in pediatric rheumatology consultations; (3) need for information on pain management options, especially nonpharmacological approaches; (4) importance of effectiveness, safety and ease of use of treatments; (5) need to discuss young people/families’ values and preferences for pain management options; and the (6) need for decision support. Themes were similar for young people, parents/caregivers and HCPs, although their respective importance varied. Conclusions Findings suggest a need for evidence-based information and communication about pain management options, which would be addressed by decision support interventions and HCP training in pain and SDM. Work is underway to develop such interventions and implement them into practice to improve pain management in JIA and in turn lead to better health outcomes.
    Type of Medium: Online Resource
    ISSN: 1546-0096
    URL: Article
    DOI: 10.1186/s12969-023-00849-0
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2023
    detail.hit.zdb_id: 2279468-2
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