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  • 1
    Online Resource
    Online Resource
    Living with dementia in hospital wards: a comparative study of staff perceptions of practice and observed patient experience
    Wiley ; 2016
    In:  International Journal of Older People Nursing Vol. 11, No. 2 ( 2016-06), p. 94-106
    Details
    In: International Journal of Older People Nursing, Wiley, Vol. 11, No. 2 ( 2016-06), p. 94-106
    Abstract: To ascertain the experiences, attitudes and knowledge of staff working in two Maltese hospital wards and the observed experiences of people with dementia living there. To examine the impact of recommendations made in October 2011 for improving the psychosocial and physical environments of the wards 1 year later. Background There is an increasing policy recognition of the need for a better trained and educated dementia care workforce and of ensuring that the environmental design of care settings meets the needs of people with dementia. Design and methods At both time points, three established and validated data‐collection methods evaluated (i) staff/patient interaction and patient experience, (ii) the extent to which the wards met dementia friendly principles and (iii) staff views about their work environment and their perceptions about their practice. Sixteen (five male and 11 female) patients with dementia and 69 staff in the two wards participated in the study. Results We noted small but important changes; however, the physical and psychosocial environments of the wards did not always align to current recommendations for dementia care, with staff perceptions of care delivery not always reflecting the observed experiences of care of those living with dementia. Conclusions Comparing staff questionnaire data with observational methods offered a unique opportunity to understand multiple perspectives in a complex hospital setting. Incorporating these perspectives into staff and management feedback allowed for recommendations that recognised both patient‐centred values and staff constraints.
    Type of Medium: Online Resource
    ISSN: 1748-3735 , 1748-3743
    URL: Issue
    URL: Article
    DOI: 10.1111/opn.2016.11.issue-2
    DOI: 10.1111/opn.12102
    Language: English
    Publisher: Wiley
    Publication Date: 2016
    detail.hit.zdb_id: 2242164-6
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  • 2
    Online Resource
    Online Resource
    Dementia knowledge and attitudes of the general public in Northern Ireland: an analysis of national survey data
    Cambridge University Press (CUP) ; 2012
    In:  International Psychogeriatrics Vol. 24, No. 10 ( 2012-10), p. 1600-1613
    Details
    In: International Psychogeriatrics, Cambridge University Press (CUP), Vol. 24, No. 10 ( 2012-10), p. 1600-1613
    Abstract: Background: This paper provides an overview of the findings from the dementia module of the 2010 Northern Ireland Life and Times (NILT) Survey: an annual survey recording public attitudes to major social policy issues. Northern Ireland, in line with many other developed countries, recently released a Dementia Strategy. The opportunity to explore the knowledge and attitudes of the general public to dementia at a national level in Northern Ireland is timely and valuable. This paper reports on an initial exploration of these attitudes, based on bivariate analysis across demographic groups. Methods: Data were analyzed using SPSS (Version 19). Descriptive and summary statistics were produced. A series of categorical bivariate relationships were tested (chi-square) and tests of association (Cramer's V) were reported. We discuss both knowledge-related findings and attitudinal findings. Results: We found that the general public in Northern Ireland have a reasonably good level of knowledge about dementia. However, attitudinal measures indicate the stereotyping and infantilization of people with dementia. Conclusions: This NILT module provides a unique source of data on attitudes to, and knowledge of, dementia. A key strength is that it provides statistically representative data with national level coverage. This information can be used to target public health education policies more effectively and to inform delivery of health and social services. The success of the module leads us to believe that it stands as a blue-print for collecting information on dementia in other social surveys.
    Type of Medium: Online Resource
    ISSN: 1041-6102 , 1741-203X
    URL: Article
    DOI: 10.1017/S1041610212000658
    Language: English
    Publisher: Cambridge University Press (CUP)
    Publication Date: 2012
    detail.hit.zdb_id: 2147136-8
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  • 3
    Online Resource
    Online Resource
    Dementia Care Mapping: A useful method for social work?
    Informa UK Limited ; 2002
    In:  Practice Vol. 14, No. 1 ( 2002-01), p. 27-38
    Details
    In: Practice, Informa UK Limited, Vol. 14, No. 1 ( 2002-01), p. 27-38
    Type of Medium: Online Resource
    ISSN: 0950-3153 , 1742-4909
    URL: Article
    DOI: 10.1080/09503150208414290
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2002
    detail.hit.zdb_id: 2162820-8
    SSG: 3,4
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  • 4
    Online Resource
    Online Resource
    Availability and Primary Health Care Orientation of Dementia-Related Services in Rural Saskatchewan, Canada
    Informa UK Limited ; 2015
    In:  Home Health Care Services Quarterly Vol. 34, No. 3-4 ( 2015-10-02), p. 137-158
    Details
    In: Home Health Care Services Quarterly, Informa UK Limited, Vol. 34, No. 3-4 ( 2015-10-02), p. 137-158
    Type of Medium: Online Resource
    ISSN: 0162-1424 , 1545-0856
    URL: Article
    DOI: 10.1080/01621424.2015.1092907
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2015
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  • 5
    Online Resource
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    Simultaneous temporal trends in dementia incidence and prevalence, 2005–2013: a population-based retrospective cohort study in Saskatchewan, Canada
    Cambridge University Press (CUP) ; 2016
    In:  International Psychogeriatrics Vol. 28, No. 10 ( 2016-10), p. 1643-1658
    Details
    In: International Psychogeriatrics, Cambridge University Press (CUP), Vol. 28, No. 10 ( 2016-10), p. 1643-1658
    Abstract: Original studies published over the last decade regarding time trends in dementia report mixed results. The aims of the present study were to use linked administrative health data for the province of Saskatchewan for the period 2005/2006 to 2012/2013 to: (1) examine simultaneous temporal trends in annual age- and sex-specific dementia incidence and prevalence among individuals aged 45 and older, and (2) stratify the changes in incidence over time by database of identification. Methods: Using a population-based retrospective cohort study design, data were extracted from seven provincial administrative health databases linked by a unique anonymized identification number. Individuals 45 years and older at first identification of dementia between April 1, 2005 and March 31, 2013 were included, based on case definition criteria met within any one of four administrative health databases (hospital, physician, prescription drug, and long-term care). Results: Between 2005/2006 and 2012/2013, the 12-month age-standardized incidence rate of dementia declined significantly by 11.07% and the 12-month age-standardized prevalence increased significantly by 30.54%. The number of incident cases decreased from 3,389 to 3,270 and the number of prevalent cases increased from 8,795 to 13,012. Incidence rate reductions were observed in every database of identification. Conclusions: We observed a simultaneous trend of decreasing incidence and increasing prevalence of dementia over a relatively short 8-year time period from 2005/2006 to 2012/2013. These trends indicate that the average survival time of dementia is lengthening. Continued observation of these time trends is warranted given the short study period.
    Type of Medium: Online Resource
    ISSN: 1041-6102 , 1741-203X
    URL: Article
    DOI: 10.1017/S1041610216000818
    Language: English
    Publisher: Cambridge University Press (CUP)
    Publication Date: 2016
    detail.hit.zdb_id: 2147136-8
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  • 6
    Online Resource
    Online Resource
    Who steers the ship? Rural family physicians’ views on collaborative care models for patients with dementia
    Cambridge University Press (CUP) ; 2014
    In:  Primary Health Care Research & Development Vol. 15, No. 01 ( 2014-01), p. 104-110
    Details
    In: Primary Health Care Research & Development, Cambridge University Press (CUP), Vol. 15, No. 01 ( 2014-01), p. 104-110
    Type of Medium: Online Resource
    ISSN: 1463-4236 , 1477-1128
    URL: Article
    DOI: 10.1017/S146342361300011X
    Language: English
    Publisher: Cambridge University Press (CUP)
    Publication Date: 2014
    detail.hit.zdb_id: 2027892-5
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  • 7
    Online Resource
    Online Resource
    From repeating routes to planning novel routes: the impact of landmarks and ageing on route integration and cognitive mapping
    Springer Science and Business Media LLC ; 2021
    In:  Psychological Research Vol. 85, No. 6 ( 2021-09), p. 2164-2176
    Details
    In: Psychological Research, Springer Science and Business Media LLC, Vol. 85, No. 6 ( 2021-09), p. 2164-2176
    Abstract: The integration of intersecting routes is an important process for the formation of cognitive maps and thus successful navigation. Here we present a novel task to study route integration and the effects that landmark information and cognitive ageing have on this process. We created two virtual environments, each comprising five places and one central intersection but with different landmark settings: in the Identical Landmark environment, the intersection contained visually monotonic features whereas the intersection contained visually distinctive features in the Different Landmarks environment. In both environments young and older participants were presented with two short routes that both traversed through the shared intersection. To test route integration, participants were asked to either repeat the learning routes, to navigate the routes from the destination to the starting place or to plan novel routes. As expected, results demonstrate better performance when repeating or retracing routes than when planning novel routes. Performance was better in younger than older participants and in the Different Landmark environment which does not require detailed knowledge of the spatial configuration of all places in the environment. A subgroup of the older participants who performed lower on a screening test for cognitive impairments could not successfully complete the experiment or did not reach the required performance criterion. These results demonstrate that strategically placed landmarks support the integration of route knowledge into spatial representations that allow for goal-dependent flexible navigation behaviour and that earliest signs of atypical cognitive ageing affect this process of route integration.
    Type of Medium: Online Resource
    ISSN: 0340-0727 , 1430-2772
    URL: Article
    DOI: 10.1007/s00426-020-01401-5
    RVK:
    CL 1000
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2021
    detail.hit.zdb_id: 1463034-5
    detail.hit.zdb_id: 2426389-8
    SSG: 5,2
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  • 8
    Online Resource
    Online Resource
    Facilitating independence: The benefits of a post-diagnostic support project for people with dementia
    SAGE Publications ; 2016
    In:  Dementia Vol. 15, No. 2 ( 2016-03), p. 162-180
    Details
    In: Dementia, SAGE Publications, Vol. 15, No. 2 ( 2016-03), p. 162-180
    Abstract: Providing support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps.
    Type of Medium: Online Resource
    ISSN: 1471-3012 , 1741-2684
    URL: Article
    DOI: 10.1177/1471301214520780
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2016
    detail.hit.zdb_id: 2084045-7
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  • 9
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    A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners
    SAGE Publications ; 2021
    In:  Dementia Vol. 20, No. 7 ( 2021-10), p. 2478-2493
    Details
    In: Dementia, SAGE Publications, Vol. 20, No. 7 ( 2021-10), p. 2478-2493
    Abstract: Research suggests there is a lack of post-diagnostic support to enable people living with dementia to fulfil social and active lives throughout their dementia journey. Gardening has been found to have many benefits for people living with dementia. Although such research is important, most research frames people with dementia as passive recipients of stimulation. Research into the impact of a community-based gardening group, where people living with dementia are active in the development of an outdoor space, is underdeveloped. Knowledge about the impact of participating in such groups is also sparse. The Good Life Club (GLC) was co-developed and evaluated to respond to these gaps. Objectives The primary aim of this article is to present the findings regarding the impact of attending the GLC on the self-reported well-being for people living with dementia and care partners. Methods Qualitative data were collected via 22 semi-structured interviews. Fourteen interviews were conducted before the GLC and eight after the GLC. Thematic analysis was used to analyse data. Dementia Care Mapping data were collected to supplement the interview data. Findings Four key themes were identified. The first was that participants considered having active participation in social life to be a key aspect of living a good life. The second was that the way that the GLC was set up and delivered gave the participants ownership of the GLC and within this they felt able to contribute. The third was the importance of social connectedness and peer support to the well-being of both people living with dementia and care partners. Fourth, positive mood and well-being was directly experienced through gardening. Conclusions The combination of long-term investment of time and energy to the GLC, ongoing friendships and in-session autonomy act as key ingredients in creating a group that is relaxed, full of humour and highly valued.
    Type of Medium: Online Resource
    ISSN: 1471-3012 , 1741-2684
    URL: Article
    DOI: 10.1177/1471301221998897
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2021
    detail.hit.zdb_id: 2084045-7
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  • 10
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    Online Resource
    ‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restrictions
    SAGE Publications ; 2022
    In:  Dementia Vol. 21, No. 8 ( 2022-11), p. 2442-2457
    Details
    In: Dementia, SAGE Publications, Vol. 21, No. 8 ( 2022-11), p. 2442-2457
    Abstract: COVID-19 and the resulting limitations on freedom of movement has been difficult for many, including individuals living with dementia and those who provide support and care. In the summer of 2021, England’s national lockdown measures eased, and regulations were amended to allow indoor social gatherings. With this enabling a return to in-person meetings, this study explored the experiences of people living with dementia and current and former care partners who had previously attended groups at Salford Institute for Dementia (UK). Two phases of research were conducted. In the first phase, during the summer of 2020, telephone interviews were utilised to ask participants ( n = 13) about their views of re-engagement and how the in-person groups might be best reintroduced. Phase two began in the summer of 2021, where mood questionnaires ( n = 10) were administered and observations conducted to explore how participants experienced the return to in-person meetings. Thematic analysis resulted in the construction of three overarching themes: planning for and the reality of transitioning; safety versus autonomy; and tensions and complexities of life in the ‘new normal’. Despite initial concerns about their reintegration into the community, participants all enjoyed resuming in-person meetings. An inclusive and consultative approach to re-engagement allowed all participants to feel valued, safe, and informed about their return to campus. However, individuals living with dementia and care partners experienced the transition to re-engagement in different ways and their perceptions shifted over time. We therefore highlight the complexities of responding to different perceptions of risk and safety, while also promoting engagement and inclusivity after a period of social isolation. In this paper, we consider implications for the re-integration of individuals with dementia and their care partners into in-person social groups and propose further avenues for research.
    Type of Medium: Online Resource
    ISSN: 1471-3012 , 1741-2684
    URL: Article
    DOI: 10.1177/14713012221118768
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2022
    detail.hit.zdb_id: 2084045-7
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