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  • 1
    Online Resource
    Online Resource
    Unpacking the Politics of Evaluation: A Dramaturgical Analysis
    SAGE Publications ; 2010
    In:  Evaluation Vol. 16, No. 4 ( 2010-10), p. 431-444
    Details
    In: Evaluation, SAGE Publications, Vol. 16, No. 4 ( 2010-10), p. 431-444
    Abstract: This article draws on a four-year evaluation that assessed the delivery of support services by 15 British hospices and social agencies to family carers of terminally ill people. It aims to examine the politics of evaluation research. Three main arguments are posited: first, that evaluation research is distinguishable from ‘quick and dirty’ evaluations, which are insufficiently resourced and not implemented properly; second, what constitutes a contribution to knowledge and particularly what constitutes ‘new’ knowledge is inherently political; third, drawing on dramaturgy theory, the article presents findings from the study that illustrate how service providers draw selectively in various ways on knowledge, to present their work favourably to their audiences. Finally, the article concludes that such knowledge manipulation raises questions about whose voices are heard within organizations, and the politics involved in the writing of grant applications, in the processes of tendering for the funding of local services.
    Type of Medium: Online Resource
    ISSN: 1356-3890 , 1461-7153
    URL: Article
    DOI: 10.1177/1356389010380002
    RVK:
    DF 2600
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2010
    detail.hit.zdb_id: 2033688-3
    SSG: 3,4
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  • 2
    Online Resource
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    Sex, Menopause and Social Context : A Qualitative Study with Heterosexual Women
    SAGE Publications ; 2010
    In:  Journal of Health Psychology Vol. 15, No. 5 ( 2010-07), p. 724-733
    Details
    In: Journal of Health Psychology, SAGE Publications, Vol. 15, No. 5 ( 2010-07), p. 724-733
    Abstract: Most research on sex and menopause has been conducted within a biomedical framework describing how, for example, declining hormone levels result in reduced sexual desire. Little research has examined women’s own perspectives. In this article we present an analysis of interview data from 12 British women experiencing natural menopause. Analysis identified the key role of interpersonal factors in sexual pleasure, alongside heterogeneity with regard to changes in sexual desire and orgasm. The findings complement existing psychological literature on the topic of women’s sexual and reproductive health which foregrounds social context and emphasizes diversity of experience.
    Type of Medium: Online Resource
    ISSN: 1359-1053 , 1461-7277
    URL: Article
    DOI: 10.1177/1359105310368187
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2010
    detail.hit.zdb_id: 2021897-7
    SSG: 5,2
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  • 3
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    ‘You have to be mindful of whose story it is’: The challenges of undertaking life story work with people with dementia and their family carers
    SAGE Publications ; 2015
    In:  Dementia Vol. 14, No. 2 ( 2015-03), p. 238-256
    Details
    In: Dementia, SAGE Publications, Vol. 14, No. 2 ( 2015-03), p. 238-256
    Abstract: Life story work is increasingly being used with people with dementia; this work offers a critical appraisal of some challenges that may be faced in practice. Design and methods An in-depth case study analysis was undertaken to understand the experiences of people with dementia, family carers and care staff in using life story work in an NHS Mental Health and Social Care Trust. Data collection included semi-structured interviews, observation, conversations and field notes. Findings Private memories were sometimes recalled by the person with dementia that were not for inclusion in any written product; enabling the person with dementia to tell their own life story could be a challenge; quality of the life story books was variable and; at times, life story work may be overused with the person with dementia. Conclusion Services should not be deterred from undertaking life story work with people with dementia, but there is a need to adopt a planned approach to its implementation that includes facilitation, education and supervision.
    Type of Medium: Online Resource
    ISSN: 1471-3012 , 1741-2684
    URL: Article
    DOI: 10.1177/1471301213495864
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2015
    detail.hit.zdb_id: 2084045-7
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  • 4
    Online Resource
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    What is the extent of potentially avoidable admissions amongst hospital inpatients with palliative care needs?
    Springer Science and Business Media LLC ; 2013
    In:  BMC Palliative Care Vol. 12, No. 1 ( 2013-12)
    Details
    In: BMC Palliative Care, Springer Science and Business Media LLC, Vol. 12, No. 1 ( 2013-12)
    Abstract: There is clear evidence that the full range of services required to support people dying at home are far from being implemented, either in England or elsewhere. No studies to date have attempted to identify the proportion of hospital admissions that could have been avoided amongst patients with palliative care needs, given existing and current local services. This study aimed to examine the extent of potentially avoidable admissions amongst hospital patients with palliative care needs. Methods A cross sectional survey of palliative care needs was undertaken in two acute hospitals in England. Appropriateness of admission was assessed by two Palliative Medicine Consultants using the following data collected from case notes: reasons for admission; diagnosis and co-morbidities; age and living arrangements; time and route of admission; medical and nursing plan on admission; specialist palliative care involvement; and evidence of cognitive impairment. Results A total of 1359 inpatients were present in the two hospitals at the time of the census. Of the 654 consenting patients/consultees, complete case note data were collected for 580 patients; the analysis in this paper relates to these 580 patients. Amongst 208 patients meeting diagnostic and prognostic criteria for palliative care need in two acute settings in England, only 6.7% were identified as ‘potentially avoidable’ hospitalisations. These patients had a median age of 84. Half of the patients lived in residential or nursing homes and it was concluded that most could have received care in this setting in place of hospital. Conclusion Our findings challenge assumptions that, within the existing configuration of palliative and end of life health and social care services, patients with palliative care needs experience a high level of potentially avoidable hospitalisations.
    Type of Medium: Online Resource
    ISSN: 1472-684X
    URL: Article
    DOI: 10.1186/1472-684X-12-9
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2013
    detail.hit.zdb_id: 2091556-1
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  • 5
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    STAKEHOLDER INVOLVEMENT THROUGHOUT HEALTH TECHNOLOGY ASSESSMENT: AN EXAMPLE FROM PALLIATIVE CARE
    Cambridge University Press (CUP) ; 2017
    In:  International Journal of Technology Assessment in Health Care Vol. 33, No. 5 ( 2017), p. 552-561
    Details
    In: International Journal of Technology Assessment in Health Care, Cambridge University Press (CUP), Vol. 33, No. 5 ( 2017), p. 552-561
    Abstract: Objectives: Internationally, funders require stakeholder involvement throughout health technology assessment (HTA). We report successes, challenges, and lessons learned from extensive stakeholder involvement throughout a palliative care case study that demonstrates new concepts and methods for HTA. Methods: A 5-step “INTEGRATE-HTA Model” developed within the INTEGRATE-HTA project guided the case study. Using convenience or purposive sampling or directly / indirectly identifying and approaching individuals / groups, stakeholders participated in qualitative research or consultation meetings. During scoping, 132 stakeholders, aged ≥ 18 years in seven countries (England, Italy, Germany, The Netherlands, Norway, Lithuania, and Poland), highlighted key issues in palliative care that assisted identification of the intervention and comparator. Subsequently stakeholders in four countries participated in face–face, telephone and / or video Skype meetings to inform evidence collection and / or review assessment results. An applicability assessment to identify contextual and implementation barriers and enablers for the case study findings involved twelve professionals in the three countries. Finally, thirteen stakeholders participated in a mock decision-making meeting in England. Results: Views about the best methods of stakeholder involvement vary internationally. Stakeholders make valuable contributions in all stages of HTA; assisting decision making about interventions, comparators, research questions; providing evidence and insights into findings, gap analyses and applicability assessments. Key challenges exist regarding inclusivity, time, and resource use. Conclusion: Stakeholder involvement is feasible and worthwhile throughout HTA, sometimes providing unique insights. Various methods can be used to include stakeholders, although challenges exist. Recognition of stakeholder expertise and further guidance about stakeholder consultation methods is needed.
    Type of Medium: Online Resource
    ISSN: 0266-4623 , 1471-6348
    URL: Article
    DOI: 10.1017/S026646231700068X
    Language: English
    Publisher: Cambridge University Press (CUP)
    Publication Date: 2017
    detail.hit.zdb_id: 2020486-3
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  • 6
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    Palliative care for frail older people: A cross-sectional survey of patients at two hospitals in England
    Informa UK Limited ; 2013
    In:  Progress in Palliative Care Vol. 21, No. 5 ( 2013-11), p. 272-277
    Details
    In: Progress in Palliative Care, Informa UK Limited, Vol. 21, No. 5 ( 2013-11), p. 272-277
    Type of Medium: Online Resource
    ISSN: 0969-9260 , 1743-291X
    URL: Article
    DOI: 10.1179/1743291X12Y.0000000043
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2013
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  • 7
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    Online Resource
    Communication surrounding transitions to palliative care in heart failure: a review and discussion of the literature
    Informa UK Limited ; 2010
    In:  Progress in Palliative Care Vol. 18, No. 5 ( 2010-10), p. 281-290
    Details
    In: Progress in Palliative Care, Informa UK Limited, Vol. 18, No. 5 ( 2010-10), p. 281-290
    Type of Medium: Online Resource
    ISSN: 0969-9260 , 1743-291X
    URL: Article
    DOI: 10.1179/096992610X12775428636827
    Language: English
    Publisher: Informa UK Limited
    Publication Date: 2010
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  • 8
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    Ethical issues in qualitative research at the end of life
    Mark Allen Group ; 1999
    In:  International Journal of Palliative Nursing Vol. 5, No. 2 ( 1999-02), p. 65-73
    Details
    In: International Journal of Palliative Nursing, Mark Allen Group, Vol. 5, No. 2 ( 1999-02), p. 65-73
    Abstract: This article discusses some of the ethical issues associated with the use of qualitative research methods in two doctoral studies conducted by nurses in a department of palliative medicine. These issues are of particular relevance with the increasing emphasis on evidence-based practice in palliative care. Both studies used multiple methods of data collection within a case study design. Study one (Seymour, 1997), an ethnography of death and dying in two critical care units, used participant observation, documentary analysis and semi-structured interviews to construct 14 detailed case studies. Each case consisted of the interactions and perceptions of those involved with a purposively selected series of critically ill individuals. Study two (Ingleton, 1997) was based on externally commissioned work and provided a longitudinal analysis of the evaluation of two palliative care services. Triangulated data from documentary analysis, structured and unstructured interviews, questionnaire surveys and observation were used. Specific ethical challenges which arose during the conduct of these studies are highlighted, showing how these were present at all stages of the research process. The article concludes by proposing a guide for the conduct of ethically responsible qualitative research.
    Type of Medium: Online Resource
    ISSN: 1357-6321 , 2052-286X
    URL: Article
    DOI: 10.12968/ijpn.1999.5.2.9919
    Language: English
    Publisher: Mark Allen Group
    Publication Date: 1999
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  • 9
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    The views of patients and carers on one palliative care service
    Mark Allen Group ; 1999
    In:  International Journal of Palliative Nursing Vol. 5, No. 4 ( 1999-05), p. 187-195
    Details
    In: International Journal of Palliative Nursing, Mark Allen Group, Vol. 5, No. 4 ( 1999-05), p. 187-195
    Abstract: Palliative care is not a discrete activity but a complex nexus of interventions which may be implemented over time, in a wide array of settings and by a wide range of people. Any attempt to measure or assess the quality of a palliative care service is conceptually and methodologically fraught with difficulties. This article presents the findings of an evaluation of one community service in the English Midlands, from the perspective of patients and carers. A variety of methods were employed to solicit the views of patients and carers: non-participant observation, a questionnaire survey and interviews using a variant of the Critical Incident Technique. Four main analytical categories emerged from recounting incidents during the interviews: ‘being there’; ‘the right atmosphere’; ‘home from home’; and ‘we didn’t need to ask’. Findings suggest that patients and carers view the service as being needs led, prompt and flexibly tailored to meet their individual needs. The critical incident interview is a valuable tool by which to access user-generated and less tangible aspects of care and evaluate aspects of palliative care provision.
    Type of Medium: Online Resource
    ISSN: 1357-6321 , 2052-286X
    URL: Article
    DOI: 10.12968/ijpn.1999.5.4.12673
    Language: English
    Publisher: Mark Allen Group
    Publication Date: 1999
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  • 10
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    Transitions to palliative care in acute hospitals in England: qualitative study
    BMJ ; 2011
    In:  BMJ Vol. 342 ( 2011), p. d1773-
    Details
    In: BMJ, BMJ, Vol. 342 ( 2011), p. d1773-
    Abstract: Objective To explore how transitions to a palliative care approach are perceived to be managed in acute hospital settings in England. Design Qualitative study. Setting Secondary or primary care settings in two contrasting areas of England. Participants 58 health professionals involved in the provision of palliative care in secondary or primary care. Results Participants identified that a structured transition to a palliative care approach of the type advocated in UK policy guidance is seldom evident in acute hospital settings. In particular they reported that prognosis is not routinely discussed with inpatients. Achieving consensus among the clinical team about transition to palliative care was seen as fundamental to the transition being effected; however, this was thought to be insufficiently achieved in practice. Secondary care professionals reported that discussions about adopting a palliative care approach to patient management were not often held with patients; primary care professionals confirmed that patients were often discharged from hospital with “false hope” of cure because this information had not been conveyed. Key barriers to ensuring a smooth transition to palliative care included the difficulty of “standing back” in an acute hospital situation, professional hierarchies that limited the ability of junior medical and nursing staff to input into decisions on care, and poor communication. Conclusion Significant barriers to implementing a policy of structured transitions to palliative care in acute hospitals were identified by health professionals in both primary and secondary care. These need to be addressed if current UK policy on management of palliative care in acute hospitals is to be established.
    Type of Medium: Online Resource
    ISSN: 0959-8138 , 1468-5833
    URL: Article
    DOI: 10.1136/bmj.d1773
    Language: English
    Publisher: BMJ
    Publication Date: 2011
    detail.hit.zdb_id: 1479799-9
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