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  • 1
    Online Resource
    Online Resource
    Hacking the hospital environment: young adults designing youth-friendly hospital rooms together with young people with cancer experiences
    Walter de Gruyter GmbH ; 2015
    In:  International Journal of Adolescent Medicine and Health Vol. 29, No. 4 ( 2015-12-9)
    Details
    In: International Journal of Adolescent Medicine and Health, Walter de Gruyter GmbH, Vol. 29, No. 4 ( 2015-12-9)
    Abstract: There is a need for youth-friendly hospital environments as the ward environment may affect both patient satisfaction and health outcomes. Objective: To involve young people in designing youth-friendly ward environment. Methods: We arranged a design competition lasting 42 h (Hackathon). Students in architecture, design, engineering, communication and anthropology participated (27 young adults) – forming eight groups. Adolescents and young adults (AYA) with current or former cancer experience participated as sparring partners. We provided workspace and food during the weekend. The groups presented their products to a jury and relevant stakeholders. Results: The groups created eight unique design concepts. The young designers were extremely flexible listening to ideas and experiences from the young patients, which led to common features including individual and flexible design, privacy in two-bed wardrooms and social contact with other hospitalized AYA. The winning project included an integrated concept for both wardrooms and the AYA day room, including logos and names for the rooms and an ‘energy wall’ in the day room. Conclusion: A hackathon event was an effective mode of youth participation. The design concepts and ideas were in line with current evidence regarding pleasing hospital environment and youth-friendly inpatient facilities and may be applicable to other young patients.
    Type of Medium: Online Resource
    ISSN: 2191-0278
    URL: Article
    DOI: 10.1515/ijamh-2015-0072
    Language: Unknown
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2015
    detail.hit.zdb_id: 2602424-X
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  • 2
    Online Resource
    Online Resource
    Parents’ views on and need for an intervention during their chronically ill child’s transfer to adult care
    SAGE Publications ; 2022
    In:  Journal of Child Health Care
    Details
    In: Journal of Child Health Care, SAGE Publications
    Abstract: Parents of chronically ill adolescents play a significant role during their child’s transition and transfer to adult care. Parents seek help and support, but appropriate initiatives are still lacking. Thus, there is an urgent call for knowledge regarding parents’ needs and views on such support. The aim of this study was to examine, in relation to parents of chronically ill adolescents: 1) views and experiences regarding their child’s transfer from paediatric to adult care, and 2) which initiatives parents preferred in relation to the transfer. The study was based on the interpretive description method, and data were collected through face-to-face or telephone interviews with parents of chronically ill adolescents aged 16–19 (n = 11). We found three overall findings: ‘Feeling acknowledged vs. feeling excluded’, ‘Perceived differences between paediatric and adult care’ and ‘Feeling safe vs. entering the unknown’, together with three preferred initiatives: 1) Joint consultations, 2) Educational events and 3) Online support/website. In general, we found that some parents were extremely worried about the transfer, while others were not. Our results suggest that transfer initiatives targeting parents should focus on knowledge, expectations, relationships and goals in accordance with the social-ecological model of adolescent and young adult readiness to transition (SMART).
    Type of Medium: Online Resource
    ISSN: 1367-4935 , 1741-2889
    URL: Article
    DOI: 10.1177/13674935221082421
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2022
    detail.hit.zdb_id: 2084013-5
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  • 3
    Online Resource
    Online Resource
    Larger Testes and Higher Inhibin B Levels in Finnish than in Danish Newborn Boys
    The Endocrine Society ; 2006
    In:  The Journal of Clinical Endocrinology & Metabolism Vol. 91, No. 7 ( 2006-07-01), p. 2732-2737
    Details
    In: The Journal of Clinical Endocrinology & Metabolism, The Endocrine Society, Vol. 91, No. 7 ( 2006-07-01), p. 2732-2737
    Abstract: Context: Recent studies showed that male reproductive health problems, such as cryptorchidism, hypospadias, testicular cancer, and low sperm quality, are more prevalent in Denmark than in Finland. Objectives: We hypothesized that, if fetal testicular dysgenesis contributed to these observations, differences in gonadal development and the hypothalamus-pituitary-testis axis would already be detectable perinatally. Thus, we investigated healthy newborn boys in both countries. Design: This was a prospective, longitudinal population-based study. Setting: Two primary obstetric centers were included at the University Hospitals of Copenhagen, Denmark, and Turku, Finland. Participants: The participants of the study included 633 Danish and 1044 Finnish boys, born at term with appropriate weight for gestational age. Interventions: Ultrasound determination of testis size at 0, 3, and 18 months and blood sampling (n = 727) at 3 months were analyzed. Main Outcome Measures: Testicular volume and reproductive hormones were measured. Results: Testis volume was significantly higher at all ages in Finnish than in Danish boys (medians, 98 vs. 95, 185 vs. 119, and 188 vs. 136 mm3, respectively; P & lt; 0.00001). Testis growth from birth to 3 months was larger in Finnish than in Danish boys (mean, 75 vs. 26 mm3; P & lt; 0.0001). Serum hormone levels were higher in Finnish than Danish boys for inhibin B (median, 456 vs. 385 pg/ml; P & lt; 0.0001), FSH (1.33 vs. 1.21 IU/liter; P & lt; 0.036), and SHBG (143 vs. 136 nmol/liter; P & lt; 0.022). Inhibin B was significantly positively correlated to testicular volume (r = 0.25; P & lt; 0.006). Conclusions: The larger testes and higher inhibin B levels most likely represent a bigger volume of seminiferous tubules in Finnish compared with Danish boys. Although this phenomenon may be attributable to a genetic difference between the two countries, it may also reflect environmental factors influencing testicular development.
    Type of Medium: Online Resource
    ISSN: 0021-972X , 1945-7197
    URL: Article
    DOI: 10.1210/jc.2005-2443
    RVK:
    XA 10000
    Language: English
    Publisher: The Endocrine Society
    Publication Date: 2006
    detail.hit.zdb_id: 2026217-6
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  • 4
    Online Resource
    Online Resource
    More than a break: the impact of a social-pedagogical intervention during young persons’ long-term hospital admission – a qualitative study
    Walter de Gruyter GmbH ; 2015
    In:  International Journal of Adolescent Medicine and Health Vol. 27, No. 1 ( 2015-02-1), p. 19-24
    Details
    In: International Journal of Adolescent Medicine and Health, Walter de Gruyter GmbH, Vol. 27, No. 1 ( 2015-02-1), p. 19-24
    Abstract: Background : Critical illness and long-term or repeated hospitalization can affect normal adolescent development. As a result, adolescents may feel isolated and “misplaced” on both pediatric and adult departments. The mission of the Center of Adolescent Medicine is to improve conditions for adolescent patients. To achieve this, the social educator offers an individualized social-pedagogical intervention for young people during long-term or repeated hospitalization . Objective: The aim of this study was to identify the impact of the social-pedagogical intervention using a qualitative approach. Materials and methods: A trained anthropologist interviewed seven adolescents who had individual sessions with a social educator during their hospital stay. The interviews were recorded and transcribed verbatim, and the transcripts were coded and thematized continuously . Results: Through qualitative analysis, the following themes emerged: Recreation; Structure, participation, and motivation; and Friends and social network. The social-pedagogical approach is a combination of interpersonal relationships and individually tailored recreational activities. Even small entertaining activities changed the focus from patient identity and contributed to the feeling of being “normal.” All young patients reported that the increased opportunities for decision-making and influence on the daily structure supported the feeling of being recognized and respected as an individual person as well as increased their motivation to go through their treatment. The interviewees emphasized the importance of experiencing something that was worth telling their friends about to help them stay in touch. Conclusion: Although the young patients emphasized the recreational aspects, the time spent with the social educator facilitated training in social competencies as well as conversations about emotional and sensitive topics.
    Type of Medium: Online Resource
    ISSN: 2191-0278 , 0334-0139
    URL: Article
    DOI: 10.1515/ijamh-2014-0009
    Language: Unknown
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2015
    detail.hit.zdb_id: 2602424-X
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  • 5
    Online Resource
    Online Resource
    Usability of a Mobile Phone App Aimed at Adolescents and Young Adults During and After Cancer Treatment: Qualitative Study
    JMIR Publications Inc. ; 2020
    In:  JMIR Cancer Vol. 6, No. 1 ( 2020-1-2), p. e15008-
    Details
    In: JMIR Cancer, JMIR Publications Inc., Vol. 6, No. 1 ( 2020-1-2), p. e15008-
    Abstract: Adolescent and young adult (AYA) cancer patients are seldom involved in the process of testing cancer-related apps. As such, knowledge about youth-specific content, functionalities, and design is sparse. As a part of a co-creation process of developing the mobile phone app Kræftværket, AYAs in treatment for cancer and in follow-up participated in a usability think-aloud test of a prototype of the app. Thus, the app was initiated, created, and evaluated by AYAs with cancer experience. Objective The aim of this study was to explore the results of a think-aloud test administered to see how the prototype of the app Kræftværket was used by AYAs in treatment for cancer and in follow-up, and to investigate the strengths and weaknesses of the app. Methods A total of 20 AYA cancer patients aged 16 to 29 years (n=10 on treatment, n=10 in follow-up) were provided with the first version of the co-created mobile phone app Kræftværket during a 6-week test period (April-May 2018). After the test period, 15 participated in individual usability think-aloud tests. The tests were video-recorded, transcribed verbatim, and analyzed using a thematic analysis approach. Results The thematic analysis led to the following themes and subthemes: navigation (subthemes: intuition, features, buttons, home page, profile), visual and graphic design (subthemes: overview, text and colors, photos, videos, YouTube), and usefulness (subthemes: notifications, posts, adding). The analysis identified gender differences in app utilization—female participants seemed to be more familiar with parts of the app. The app seemed to be more relevant to AYAs receiving treatment due to app functions such as tracking symptoms and searching for relevant information. Lack of notifications and incorrect counting of posts were perceived as barriers to using the app. Conclusions Usability testing is crucial to meet the needs of the AYA target audience. AYA cancer apps should preferably be relevant, targeted, and unique, and include a tracking function and AYA-produced videos. Notifications and correct marking and ordering of posts are critical to make apps engaging and dynamic. Further research is recommended to evaluate the Kræftværket app with the input of more AYAs.
    Type of Medium: Online Resource
    ISSN: 2369-1999
    URL: Article
    DOI: 10.2196/15008
    Language: English
    Publisher: JMIR Publications Inc.
    Publication Date: 2020
    detail.hit.zdb_id: 2928105-2
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  • 6
    Online Resource
    Online Resource
    Experiences of Social Isolation During the COVID-19 Lockdown Among Adolescents and Young Adult Cancer Patients and Survivors
    Mary Ann Liebert Inc ; 2021
    In:  Journal of Adolescent and Young Adult Oncology Vol. 10, No. 2 ( 2021-04-01), p. 142-147
    Details
    In: Journal of Adolescent and Young Adult Oncology, Mary Ann Liebert Inc, Vol. 10, No. 2 ( 2021-04-01), p. 142-147
    Type of Medium: Online Resource
    ISSN: 2156-5333 , 2156-535X
    URL: Article
    DOI: 10.1089/jayao.2020.0202
    Language: English
    Publisher: Mary Ann Liebert Inc
    Publication Date: 2021
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  • 7
    Online Resource
    Online Resource
    Acquired cryptorchidism is frequent in infancy and childhood
    Wiley ; 2009
    In:  International Journal of Andrology Vol. 32, No. 4 ( 2009-08), p. 423-428
    Details
    In: International Journal of Andrology, Wiley, Vol. 32, No. 4 ( 2009-08), p. 423-428
    Type of Medium: Online Resource
    ISSN: 0105-6263 , 1365-2605
    URL: Issue
    URL: Article
    DOI: 10.1111/ija.2009.32.issue-4
    DOI: 10.1111/j.1365-2605.2008.00946.x
    Language: English
    Publisher: Wiley
    Publication Date: 2009
    detail.hit.zdb_id: 2011828-4
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  • 8
    Online Resource
    Online Resource
    Parents to chronically ill adolescents have ambivalent views on confidential youth consultations – a mixed methods study
    Walter de Gruyter GmbH ; 2021
    In:  International Journal of Adolescent Medicine and Health Vol. 33, No. 4 ( 2021-08-11)
    Details
    In: International Journal of Adolescent Medicine and Health, Walter de Gruyter GmbH, Vol. 33, No. 4 ( 2021-08-11)
    Abstract: Confidential youth consultations aiming at enhancing adolescent autonomy are a cornerstone of transitional care. At the same time, parental support is essential. These conflicting considerations result in a clinical dilemma. Objective The aim of this study was to examine the attitudes of parents to chronically ill adolescents regarding confidential youth consultations and to explore the underlying reasons. Methods A sequential explanatory mixed methods design consisting of a cross-sectional questionnaire survey (n = 117) and three focus group interviews among parents (n = 12) to chronically ill adolescents (12–19 years) was used. Quantitative data were analyzed descriptively. Qualitative data were analyzed using King’s template method. Results The parents preferred independent youth consultations starting around the age of 14–15 years. Around 60% of the parents had one or more concerns regarding independent youth consultations. Although 64% of the parents supported conditional or full confidentiality during adolescence, 95% wanted information even though their child did not consent. In the qualitative analysis, the parents described caring for a child with chronic disease as a term of life perceiving themselves as an “octopus” with numerous roles related to daily care and treatment and at the same time with thoughts and worries regarding the future. We found four themes: ‘a life with chronic disease’, ‘responsibility’, ‘protection’ and ‘apprenticeship’. The parents’ attitudes were influenced by their roles and their perception of the adolescent’s competences as well as their experience with the healthcare system. Conclusions Our findings suggest that parents need transitional care too.
    Type of Medium: Online Resource
    ISSN: 2191-0278
    URL: Article
    DOI: 10.1515/ijamh-2018-0226
    Language: English
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2021
    detail.hit.zdb_id: 2602424-X
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  • 9
    Online Resource
    Online Resource
    Feasibility of a transition intervention aimed at adolescents with chronic illness
    Walter de Gruyter GmbH ; 2016
    In:  International Journal of Adolescent Medicine and Health Vol. 30, No. 3 ( 2016-10-14)
    Details
    In: International Journal of Adolescent Medicine and Health, Walter de Gruyter GmbH, Vol. 30, No. 3 ( 2016-10-14)
    Abstract: International guidelines recommend planned and structured transition programmes for adolescents with chronic illness because inadequate transition may lead to poor disease control and risk of lacking outpatient follow-up. Objective: To investigate the feasibility of a transition intervention aimed at adolescents with chronic illness focusing on declines, drop-outs, no-shows and advantages and disadvantages of participating. Methods: We invited 236 adolescents (12–20 years) with juvenile idiopathic arthritis (JIA) to participate in a randomised controlled trial (RCT) transition intervention. Reasons for decline and drop-outs were calculated. Adolescents’ experiences of advantages and disadvantages of participating and reasons for no-shows were investigated through focus groups and telephone interviews, which were analysed using thematic analysis. Results: One hundred and twenty of the 236 eligible patients declined to participate in the intervention and 20% dropped out during the intervention. Unspecified declines and practical issues were the most common reason to decline, and ‘do not wish to continue’ was the most common reason to drop-out. Reasons for no-shows were forgetting and being too busy. Advantages of participating were stated as ‘participating without parents’, ‘trust and confidentiality’, ‘being able to set the agenda’ and ‘responsiveness’. Disadvantages were ‘unclear aim of the study’, ‘meeting others with JIA’, ‘too few conversations’ and ‘transport issues’. Conclusions: Many adolescents had difficulties understanding the aim of the intervention. However, most participants appreciated the conversations about identity as well as the trust and confidentiality in the communication. In the future, adolescents should be offered more individually organised programmes according to their preferences and needs in cooperation with parents and health care providers.
    Type of Medium: Online Resource
    ISSN: 2191-0278 , 0334-0139
    URL: Article
    DOI: 10.1515/ijamh-2016-0047
    Language: Unknown
    Publisher: Walter de Gruyter GmbH
    Publication Date: 2016
    detail.hit.zdb_id: 2602424-X
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  • 10
    Online Resource
    Online Resource
    Increasing risk of psychiatric morbidity after childhood onset type 1 diabetes: a population-based cohort study
    Springer Science and Business Media LLC ; 2018
    In:  Diabetologia Vol. 61, No. 4 ( 2018-4), p. 831-838
    Details
    In: Diabetologia, Springer Science and Business Media LLC, Vol. 61, No. 4 ( 2018-4), p. 831-838
    Type of Medium: Online Resource
    ISSN: 0012-186X , 1432-0428
    URL: Article
    DOI: 10.1007/s00125-017-4517-7
    RVK:
    XA 40615
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2018
    detail.hit.zdb_id: 1458993-X
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