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  • 1
    In: Pediatric Rheumatology, Springer Science and Business Media LLC, Vol. 15, No. S1 ( 2017-5)
    Type of Medium: Online Resource
    ISSN: 1546-0096
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2017
    detail.hit.zdb_id: 2279468-2
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  • 2
    Online Resource
    Online Resource
    Cambridge University Press (CUP) ; 2021
    In:  Canadian Journal on Aging / La Revue canadienne du vieillissement Vol. 40, No. 3 ( 2021-09), p. 436-450
    In: Canadian Journal on Aging / La Revue canadienne du vieillissement, Cambridge University Press (CUP), Vol. 40, No. 3 ( 2021-09), p. 436-450
    Abstract: Nous présentons le développement d’une stratégie régionale en matière de démence au sud-ouest de l’Ontario (Canada). Des collaborations rassemblant des parties prenantes d’une autorité de santé régionale ont permis d’élaborer une stratégie en matière de démence. Des entretiens ont été menés avec des personnes atteintes de démence et leurs proches soignants ( n = 26), ainsi qu’avec des administrateurs de soins de santé et des décideurs politiques ( n = 33). Une enquête sur la définition des priorités a aussi été réalisée ( n = 64). Les deux groupes de participants ont identifié la compassion, le professionnalisme et les soins prodigués par les prestataires de soins aux premiers stades de la démence comme étant les points forts du système. Les deux groupes ont également souligné la nécessité d’une intégration et d’une coordination accrues, de soins davantage axés sur la personne, d’un soutien aux proches soignants et d’une plus grande souplesse dans la prestation et la réception des services. Les priorités les plus reconnues étaient les suivantes : améliorer le soutien aux proches soignants, l’accès aux soins et leur qualité à l’échelle du système. Ces forces, besoins et priorités ont été intégrés dans un cadre stratégique intitulé "Whole Person, Whole Journey". Les organisations œuvrant sur des stratégies en matière de démence pourront utiliser ce modèle comme tremplin pour leurs propres activités.
    Type of Medium: Online Resource
    ISSN: 0714-9808 , 1710-1107
    Language: English
    Publisher: Cambridge University Press (CUP)
    Publication Date: 2021
    detail.hit.zdb_id: 2166531-X
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  • 3
    In: JMIR Aging, JMIR Publications Inc., Vol. 5, No. 4 ( 2022-10-28), p. e39189-
    Abstract: There are many mobile health (mHealth) apps for older adult patients, but research has found that broadly speaking, mHealth still fails to meet the specific needs of older adult users. Others have highlighted the need to embed users in the mHealth design process in a fulsome and meaningful way. Co-design has been widely used in the development of mHealth apps and involves stakeholders in each phase of the design and development process. The involvement of older adults in the co-design processes is variable. To date, co-design approaches have tended toward embedding the stakeholders in early phases (eg, predesign and generative) but not throughout. Objective The aim of this study was to reflect on the processes and lessons learned from engaging in an extended co-design process to develop an mHealth app for older adults, with older users contributing at each phase. This study aimed to design an mHealth tool to assist older adults in coordinating their care with health care professionals and caregivers. Methods Our work to conceptualize, develop, and test the mHealth app consisted of 4 phases: phase 1, consulting stakeholders; phase 2, app development and co-designing with older adults; phase 3, field-testing with a smaller sample of older adult volunteer testers; and phase 4, reflecting, internally, on lessons learned from this process. In each phase, we drew on qualitative methods, including in-depth interviews and focus groups, all of which were analyzed in NVivo 11, using team-based thematic analysis. Results In phase 1, we identified key features that older adults and primary care providers wanted in an app, and each user group identified different priority features (older adults principally sought support to use the mHealth app, whereas primary care providers prioritized recoding illnesses, immunizations, and appointments). Phases 2 and 3 revealed significant mismatches between what the older adult users wanted and what our developers were able and willing to deliver. We were unable to craft the app that our consultations recommended, which the older adult field testers asked for. In phase 4, we reflected on our abilities to embed the voices and perspectives of older adults throughout the project when working with a developer not familiar with or committed to the core principles of co-design. We draw on this challenging experience to highlight several recommendations for those embarking on a co-design process that includes developers and IT vendors, researchers, and older adult users. Conclusions Although our final mHealth app did not reflect all the needs and wishes of our older adult testers, our consultation process identified key features and contextual information essential for those developing apps to support older adults in managing their health and health care.
    Type of Medium: Online Resource
    ISSN: 2561-7605
    Language: English
    Publisher: JMIR Publications Inc.
    Publication Date: 2022
    detail.hit.zdb_id: 2985919-0
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