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  • 1
    Online Resource
    Online Resource
    The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016
    SAGE Publications ; 2023
    In:  Public Health Reports
    Details
    In: Public Health Reports, SAGE Publications
    Abstract: Autism spectrum disorder (autism) is a heterogeneous condition that poses challenges in describing the needs of individuals with autism and making prognoses about future outcomes. We applied a newly proposed definition of profound autism to surveillance data to estimate the percentage of children with autism who have profound autism and describe their sociodemographic and clinical characteristics. Methods: We analyzed population-based surveillance data from the Autism and Developmental Disabilities Monitoring Network for 20 135 children aged 8 years with autism during 2000-2016. Children were classified as having profound autism if they were nonverbal, were minimally verbal, or had an intelligence quotient 〈 50. Results: The percentage of 8-year-old children with profound autism among those with autism was 26.7%. Compared with children with non–profound autism, children with profound autism were more likely to be female, from racial and ethnic minority groups, of low socioeconomic status, born preterm or with low birth weight; have self-injurious behaviors; have seizure disorders; and have lower adaptive scores. In 2016, the prevalence of profound autism was 4.6 per 1000 8-year-olds. The prevalence ratio (PR) of profound autism was higher among non-Hispanic Asian/Native Hawaiian/Other Pacific Islander (PR = 1.55; 95 CI, 1.38-1.73), non-Hispanic Black (PR = 1.76; 95% CI, 1.67-1.86), and Hispanic (PR = 1.50; 95% CI, 0.88-1.26) children than among non-Hispanic White children. Conclusions: As the population of children with autism continues to change, describing and quantifying the population with profound autism is important for planning. Policies and programs could consider the needs of people with profound autism across the life span to ensure their needs are met.
    Type of Medium: Online Resource
    ISSN: 0033-3549 , 1468-2877
    URL: Article
    DOI: 10.1177/00333549231163551
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2023
    detail.hit.zdb_id: 2017700-8
    SSG: 20,1
    SSG: 27
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  • 2
    Online Resource
    Online Resource
    Attitudes toward Genetic Testing and Fetal Diagnosis, 1990-1996
    SAGE Publications ; 1999
    In:  Journal of Health and Social Behavior Vol. 40, No. 4 ( 1999-12), p. 429-
    Details
    In: Journal of Health and Social Behavior, SAGE Publications, Vol. 40, No. 4 ( 1999-12), p. 429-
    Type of Medium: Online Resource
    ISSN: 0022-1465
    URL: Article
    DOI: 10.2307/2676335
    Language: Unknown
    Publisher: SAGE Publications
    Publication Date: 1999
    detail.hit.zdb_id: 2010257-4
    SSG: 5,2
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  • 3
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    A Novel Approach: The Sociology of Literature, Children's Books, and Social Inequality
    SAGE Publications ; 2011
    In:  International Journal of Qualitative Methods Vol. 10, No. 4 ( 2011-12), p. 307-320
    Details
    In: International Journal of Qualitative Methods, SAGE Publications, Vol. 10, No. 4 ( 2011-12), p. 307-320
    Abstract: This article discusses the complexity of literary analysis and the implications of using fiction as a source of sociological data. This project infuses literary analysis with sociological imagination. Using a random sample of children's novels published between 1930 and 1980, this article describes both a methodological approach to the analysis of children's books and the subsequent development of two analytical categories of novels. The first category captures books whose narratives describe and support unequal social arrangements; the second category captures those whose narratives work instead to identify inequality and disrupt it. Building on Griswold's methodological approach to literary fiction, this project examines how children's novels describe, challenge, or even subvert systems of inequality. Through a sociological reading of three sampled texts - Tales of a Fourth Grade Nothing, A Wrinkle in Time, and Hitty: Her First Hundred Years - readers learn how these analytical categories work and how the sociology of literature might be enriched by attention to structural forms of inequality within literary fiction. This essay investigates children's books in order to reinvigorate the discussion and use of novels by sociologists.
    Type of Medium: Online Resource
    ISSN: 1609-4069 , 1609-4069
    URL: Article
    DOI: 10.1177/160940691101000401
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2011
    detail.hit.zdb_id: 2135788-2
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  • 4
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    Parental Preferences for FDA-Approved Medications Prescribed for Their Children
    SAGE Publications ; 2011
    In:  Clinical Pediatrics Vol. 50, No. 3 ( 2011-03), p. 208-214
    Details
    In: Clinical Pediatrics, SAGE Publications, Vol. 50, No. 3 ( 2011-03), p. 208-214
    Abstract: Objective. To describe parental preferences for FDA-approved prescription medications for their children. Study design. Cross-sectional Web-enabled survey of a national sample of 1562 parents. Results. Response rate was 61%. Most parents (77%) preferred prescription of only FDA-approved medications for their child. However, one half of parents preferred that their child’s doctor prescribe medication that is safest and works best, even if not FDA approved for children. One third of parents (34%) preferred nothing but FDA-approved medications for their child, regardless of drug safety, effectiveness, or cost. Controlling for parent race and education, mothers (odds ratio = 1.52; P = .004) and older parents (odds ratio = 1.60; P = .025) were more likely to prefer nothing but FDA-approved medications for their children compared with fathers and younger parents. Conclusions. Although most parents initially indicate preference for FDA-approved medications, one half of parents will accept a non-FDA-approved medication for their children with the understanding that it is safer or more effective than the FDA-approved alternative.
    Type of Medium: Online Resource
    ISSN: 0009-9228 , 1938-2707
    URL: Article
    DOI: 10.1177/0009922810385105
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2011
    detail.hit.zdb_id: 2066146-0
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  • 5
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    Relationship of Hospital Organizational Culture to Patient Safety Climate in the Veterans Health Administration
    SAGE Publications ; 2009
    In:  Medical Care Research and Review Vol. 66, No. 3 ( 2009-06), p. 320-338
    Details
    In: Medical Care Research and Review, SAGE Publications, Vol. 66, No. 3 ( 2009-06), p. 320-338
    Abstract: Improving safety climate could enhance patient safety, yet little evidence exists regarding the relationship between hospital characteristics and safety climate. This study assessed the relationship between hospitals' organizational culture and safety climate in Veterans Health Administration (VA) hospitals nationally. Data were collected from a sample of employees in a stratified random sample of 30 VA hospitals over a 6-month period (response rate = 50%; n = 4,625). The Patient Safety Climate in Healthcare Organizations (PSCHO) and the Zammuto and Krakower surveys were used to measure safety climate and organizational culture, respectively. Higher levels of safety climate were significantly associated with higher levels of group and entrepreneurial cultures, while lower levels of safety climate were associated with higher levels of hierarchical culture. Hospitals could use these results to design specific interventions aimed at improving safety climate.
    Type of Medium: Online Resource
    ISSN: 1077-5587 , 1552-6801
    URL: Article
    DOI: 10.1177/1077558709331812
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2009
    detail.hit.zdb_id: 2070248-6
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  • 6
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    Online Resource
    Hospital Safety Climate and Safety Outcomes: Is There a Relationship in the VA?
    SAGE Publications ; 2010
    In:  Medical Care Research and Review Vol. 67, No. 5 ( 2010-10), p. 590-608
    Details
    In: Medical Care Research and Review, SAGE Publications, Vol. 67, No. 5 ( 2010-10), p. 590-608
    Abstract: Strengthening safety climate is recognized as a necessary strategy for improving patient safety. Yet there is little empirical evidence linking hospitals’ safety climate with safety outcomes.The authors explored the potential relationship between safety climate and Veterans Health Administration hospital safety performance using the Patient Safety Indicator (PSI) rates. Safety climate survey data were merged with hospital discharge data to calculate PSIs. Linear regressions examined the relationship between hospitals’ safety climate and dimensions of safety climate with individual PSIs and a PSI composite measure, controlling for organizational-level variables. Safety climate overall was not related to the PSIs or to the PSI composite, although a few individual dimensions of safety climate were associated with specific PSIs. Perceptions of frontline staff were more closely aligned with PSIs than those of senior managers.
    Type of Medium: Online Resource
    ISSN: 1077-5587 , 1552-6801
    URL: Article
    DOI: 10.1177/1077558709356703
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2010
    detail.hit.zdb_id: 2070248-6
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  • 7
    Online Resource
    Online Resource
    Availability of Services and Caregiver Burden: Supporting Individuals With Neurogenetic Conditions During the COVID-19 Pandemic
    SAGE Publications ; 2021
    In:  Journal of Child Neurology Vol. 36, No. 9 ( 2021-08), p. 760-767
    Details
    In: Journal of Child Neurology, SAGE Publications, Vol. 36, No. 9 ( 2021-08), p. 760-767
    Abstract: Because of the COVID-19 pandemic, in-person services for individuals with neurodevelopmental disabilities were disrupted globally, resulting in a transition to remote delivery of services and therapies. For individuals with neurogenetic conditions, reliance on nonclinical caregivers to facilitate all therapies and care was unprecedented. The study aimed to (1) describe caregivers’ reported impact on their dependent’s services, therapies, medical needs, and impact on themselves as a result of the COVID-19 pandemic and (2) assess the relationship between the extent of disruption of services and the degree of self-reported caregiver burden. Two online questionnaires were completed by caregivers participating in Simons Searchlight in April and May 2020. Surveys were completed by caregivers of children or dependent adults with neurodevelopmental genetic conditions in Simons Searchlight. Caregivers reported that the impact of the COVID-19 pandemic moderately or severely disrupted services, therapies, or medical supports. The majority of caregivers were responsible for providing some aspect of therapy. Caregivers reported “feeling stressed but able to deal with problems as they arise,” and reported lower anxiety at follow-up. Caregivers reported that telehealth services were not meeting the needs of those with complex medical needs. Future surveys will assess if and how medical systems, educational programs, therapists, and caregivers adapt to the challenges arising during the COVID-19 pandemic.
    Type of Medium: Online Resource
    ISSN: 0883-0738 , 1708-8283
    URL: Article
    DOI: 10.1177/08830738211001209
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2021
    detail.hit.zdb_id: 2068710-2
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  • 8
    Online Resource
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    Marketing objects as talking machines: The performative capacity of product packages
    SAGE Publications ; 2023
    In:  Marketing Theory
    Details
    In: Marketing Theory, SAGE Publications
    Abstract: In this paper, I extend the established concept of performativity by focusing on the origins and micro-level interactional strategies of marketing objects. In product markets wherein face-to-face interactions between buyers and sellers are impossible, profit-seeking firms depend upon marketing objects—and on their packaging stories—to interact with buyers. While much research focuses on the particular effects of performative marketing objects on consumers, I explore the conditions required for such effects to emerge. In this project, I employ a richly descriptive case study design by focusing on a transnational specialty food firm based in Indonesia and examining the complete collection of food product packages ( N = 81) that communicate with buyers on behalf of its products for sale. I understand marketing practices as helping to create the phenomena they allegedly describe, and thus contribute to object-oriented marketing theory through a dramaturgical analysis of packaging talk.
    Type of Medium: Online Resource
    ISSN: 1470-5931 , 1741-301X
    URL: Article
    DOI: 10.1177/14705931231207319
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2023
    detail.hit.zdb_id: 2072860-8
    SSG: 3,2
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  • 9
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    The Strategic, Shifting Work of Market Devices: Selective Stories and Oriented Knowledge
    SAGE Publications ; 2019
    In:  Cultural Sociology Vol. 13, No. 2 ( 2019-06), p. 198-216
    Details
    In: Cultural Sociology, SAGE Publications, Vol. 13, No. 2 ( 2019-06), p. 198-216
    Abstract: For the producers of food products originating in the tropics, far from consumers and their local farmers’ markets, vital processes of interacting and storytelling necessarily take place in grocery store aisles and rely on food product packages as vehicles for valuable stories. As a result, specialty food entrepreneurs are dependent upon food packages—market devices—to communicate about the goods they contain in order to create symbolic value on behalf of those goods. Packaging stories thus contribute to the contextualization of products whose qualities are not inherent, but are, rather, the outcome of ongoing processes of strategic qualification. Without them and the valuable discursive details they provide, the market of singularities could not function. In this article, I read closely the textual data contained on a nearly complete collection of a case-study firm’s food packages (N=75) that represents the firm’s longitudinal attempts to tell selective, oriented stories about a variety of Indonesian food products. I find three primary types of productive labor represented in the sample of packaging stories. I further describe the emergence and disappearance of such stories and their discursive details, given the timing of the release or revision of their market devices. By redirecting analytical attention toward the origins and production of market devices—rather than on their impact on consumers—this article investigates the strategic and shifting storytelling work of specialty food entrepreneurs who gain access to cultural intermediation through their own branded market devices.
    Type of Medium: Online Resource
    ISSN: 1749-9755 , 1749-9763
    URL: Article
    DOI: 10.1177/1749975519838597
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2019
    detail.hit.zdb_id: 2278651-X
    SSG: 3,4
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  • 10
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    Intraoperative Nerve Monitoring in Thyroidectomies for Malignancy: Does It Matter?
    SAGE Publications ; 2022
    In:  The American Surgeon Vol. 88, No. 6 ( 2022-06), p. 1187-1194
    Details
    In: The American Surgeon, SAGE Publications, Vol. 88, No. 6 ( 2022-06), p. 1187-1194
    Abstract: Recurrent laryngeal nerve (RLN) injury and postoperative hypocalcemia are potential complications of thyroidectomy, particularly in malignancy. Intraoperative nerve monitoring (IONM) remains controversial. We sought to evaluate the impact of IONM on these complications using a national data set. Methods The American College of Surgeons National Surgical Quality Improvement Program thyroidectomy-targeted data set was queried for patients who underwent thyroidectomies from 2016 to 2017. Patients were grouped according to IONM use. Logistic regression models were constructed to evaluate associations of variables with 30-day hypocalcemic events (HCEs) and RLN injury. Associations were expressed as odds ratios (ORs) with 95% confidence intervals (95% CIs). A subgroup analysis was performed of patients with malignancy. Results A total of 9527 patients were identified; 5969 (62.7%) underwent thyroidectomy with IONM and 3558 (37.3%) without. By multivariable analysis, IONM had protective associations with HCE (OR = .81, 95% CI = .68-.96; P = .013) and RLN injury (OR = .83, 95% CI = .69-.98; P = .033). Malignancy increased risk of HCE (OR = 1.21, 95% CI=1.01-1.45; P = .038) and RLN injury (OR = 1.22, 95% CI = 1.02-1.46; P = .034). A large proportion (5943/9527, 62.4%) of patients had malignancy; 3646 (61.3%) underwent thyroidectomy with IONM and 2297 (38.7%) without. In the subgroup analysis, IONM had stronger protective associations with HCE (OR = .73, 95% CI = .60-.90; P = .003) and RLN injury (OR = .76, 95% CI = .62-.94; P = .012). Discussion Malignancy was associated with increased risk of HCE and RLN injury. Intraoperative nerve monitoring had a protective association with HCE and RLN injury, both overall, and in the malignant subgroup. Intraoperative nerve monitoring was correlated with improved thyroidectomy outcomes, especially if the indication was malignancy. This warrants further study to clarify cause and effect.
    Type of Medium: Online Resource
    ISSN: 0003-1348 , 1555-9823
    URL: Article
    DOI: 10.1177/0003134821991967
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2022
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