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  • Oxford University Press (OUP)  (3)
  • Moscoso, Paula  (3)
  • 1
    Online Resource
    Online Resource
    MO560: Adherence to Nutritional Recommendations as Expressed by Patients on Hemodialysis, Their Informal Carers and Healthcare Professionals—the Goodrenal Project
    Oxford University Press (OUP) ; 2022
    In:  Nephrology Dialysis Transplantation Vol. 37, No. Supplement_3 ( 2022-05-03)
    Details
    In: Nephrology Dialysis Transplantation, Oxford University Press (OUP), Vol. 37, No. Supplement_3 ( 2022-05-03)
    Abstract: Low adherence to nutritional recommendations is common in patients on hemodialysis (HD), but the reasons are not well known. We explored the main needs, barriers and facilitators affecting nutritional adherence as experienced by patients on HD, their informal carers and their healthcare professionals (HCPs) at the dialysis centre.   METHOD This study is part of the GoodRENal project—funded by the European Community, Erasmus + program that comprises four countries: Spain, Sweden, Belgium and Greece. As part of this project, exploratory questionnaires were constructed and answered by the patients, their carers and their HCPs. The questionnaire comprised three sections consisting of statements exploring the needs, barriers and facilitators affecting adherence to nutritional recommendations for patients on HD. Each statement could be rated from 1 (strongly disagree), 2 (disagree), 3 (neither agree or disagree), 4 (agree) to 5 (strongly agree). In addition, there was a section for free text. To avoid bias in patient selection, 10 patients were randomized from the first dialysis shift of the week in the four participating countries.  RESULTS In total, 40 patients, 40 informal carers and 40 HCPs HealthCP accepted to participate, out of whom 38 patients (68% male, 62 ± 15 years), 33 informal carers (21% male, age 54 ± 12 years, of whom 68% were spouses) and 37 HCPs (22% male, age 42 ± 10 years, 60% were nurses) answered the questionnaires. Two of the four centres had a dedicated dietitian at the dialysis unit, who worked there on average 18 ± 8 hours per week. At the dialysis units without a dietitian, the nurses and doctors were responsible for nutritional care. To simplify the analysis, answers rated as 4 and 5 were grouped as agree. The main findings are presented below: CONCLUSION These descriptive findings show that patients, informal carers and HCPs identified different needs, barriers, and facilitators to increase adherence to nutritional recommendations. These results can be used to build and tailor strategies aimed at patients, informal carers and HCPs.
    Type of Medium: Online Resource
    ISSN: 0931-0509 , 1460-2385
    URL: Article
    DOI: 10.1093/ndt/gfac074.005
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2022
    detail.hit.zdb_id: 1465709-0
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  • 2
    Online Resource
    Online Resource
    MO925: Psychological Wellbeing in Haemodialysis Patients: Comparing Perspectives From Patients, Caregivers and Healthcare Professionals––The Goodrenal Project
    Oxford University Press (OUP) ; 2022
    In:  Nephrology Dialysis Transplantation Vol. 37, No. Supplement_3 ( 2022-05-03)
    Details
    In: Nephrology Dialysis Transplantation, Oxford University Press (OUP), Vol. 37, No. Supplement_3 ( 2022-05-03)
    Abstract: The start of dialysis therapy can contribute to the development of depression, stress and anxiety, which, in turn, has an impact on the patient´s quality of life, the disease process and the associated social and health care costs. This underlines the importance of studies that analyse the psychological profiles of patients on maintenance dialysis to establish relationships between risk factors, prevention steps and intervention strategies aimed at improving their quality of life. Therefore, we explored the perceptions regarding the patient's psychological wellbeing, seen from three different perspectives: patients’ own, their caregivers’ and that of their healthcare professionals (HCPs). METHOD This study is part of the GoodRENAL Project, which is funded by the European Community Erasmus + and involves four countries: Belgium, Greece, Spain and Sweden. Exploratory questionnaires regarding patients’ psychological wellbeing were developed by the team, and responses were obtained from three groups of stakeholders: 38 patients, who were randomly allocated to this study from the first dialysis shift of the week (mean age 58 ± 0.51 years; 50% women); 34 caregivers (mean age 54 ± 13 years; 80% women); and 39 healthcare professionals (HCPs mean age 42 ± 10 years; 79% women). The exploratory questionnaires comprised different parts, exploring the psychological state of patients through closed questions, open questions and questions about barriers, needs and facilitators regarding psychological wellbeing. The patients’ and caregivers’ questionnaires had 10 items scored from 1 (‘never’) to 5 (‘almost all the time’). The HCPs questionnaire included 10 items rated as 1 (‘totally disagree’) to 5 (‘totally agree’). RESULTS To analyse the descriptive data, the response frequency was grouped into items based on the level of agreement or the frequency of the occurrence (almost all the time and all the time). The table below shows answers received from patients, caregivers and HCPs. CONCLUSION Patients consistently reported a much more positive subjective perception of their psychological state, compared with that assumed by HCPs, while the perceived perception of patients’ states reported by their caregivers was in general closer to that reported by the patients. The extent by which patients’ positive responses are related to adaptations such as social desirability, distorted subjective perception, minimization or normalization of symptomatology should be explored in further studies.
    Type of Medium: Online Resource
    ISSN: 0931-0509 , 1460-2385
    URL: Article
    DOI: 10.1093/ndt/gfac084.020
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2022
    detail.hit.zdb_id: 1465709-0
    Location Call Number Limitation Availability
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    Online Resource
  • 3
    Online Resource
    Online Resource
    MO917: Self-Reported Perceptions of Haemodialysis Patients´ Cognitive State––The Goodrenal Project
    Oxford University Press (OUP) ; 2022
    In:  Nephrology Dialysis Transplantation Vol. 37, No. Supplement_3 ( 2022-05-03)
    Details
    In: Nephrology Dialysis Transplantation, Oxford University Press (OUP), Vol. 37, No. Supplement_3 ( 2022-05-03)
    Abstract: Patients with chronic kidney disease have an increased risk of developing cognitive impairment and neurocognitive disorders including Alzheimer's disease that affect their quality of life. Changes involve deterioration of domains such as learning and memory, language, attention, executive function, perceptual motor or social cognition. We explored the subjective perception that the patients have regarding their cognitive state. METHOD This study is part of the GoodRENAL project, which is funded by the European Community Erasmus + and involves four countries: Belgium, Greece, Spain and Sweden. Exploratory questionnaires regarding patients’ cognitive state were answered by 38 patients (mean age 58 ± 0.5 years; 50% women) randomly allocated to this study from the dialysis shifts. The questionnaire had 10 questions with answers rated as 1 (never), 2 (sometimes), 3 (half of the time), 4 (more than half of the time) and 5 (almost all the time), plus 1 open question about main barriers, difficulties or needs related to their cognitive state. RESULTS To analyse the descriptive data, the response frequency was grouped into items based on the frequency of the occurrence (almost all the time and all the time). The table below summarizes answers received from patients. CONCLUSION The patients’ perception of their attention capacity, memory function and learning capacity was in general positive. However, further studies using validated questionnaires regarding different aspects such as attention, memory or learning functionality are needed to confirm these findings.
    Type of Medium: Online Resource
    ISSN: 0931-0509 , 1460-2385
    URL: Article
    DOI: 10.1093/ndt/gfac084.012
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2022
    detail.hit.zdb_id: 1465709-0
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
    Online Resource
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