GLORIA

GEOMAR Library Ocean Research Information Access

Your email was sent successfully. Check your inbox.

An error occurred while sending the email. Please try again.

Proceed reservation?

Export
  • 1
    In: Cancer Epidemiology, Biomarkers & Prevention, American Association for Cancer Research (AACR), Vol. 23, No. 11_Supplement ( 2014-11-01), p. A58-A58
    Abstract: Introduction: Biobanks are repositories that store biospecimens and health information for research. Healthy control samples from diverse racial/ethnic groups must be represented in biobanks to better examine genetic and environmental risk factors for diseases such as cancer.1 However, the general public appears to be skeptical about the purpose of these repositories, with minority populations being less likely to donate samples. 2,3 Specific media approaches have shown improved efficacy for communicating health information to minority audiences, including Hispanics. Audiovisual materials offer advantages to Hispanic populations including: high acceptability4; broad dissemination; appealing to individuals with low literacy5; and can be viewed with family.4 Recently, the Tampa Bay Community Cancer Network (TBCCN) developed an educational biobanking DVD in Spanish (“Biobancos: Una esperanza de cura para el cáncer”) for the Tampa community. In preparation for a study conducted by the Ponce School of Medicine-Moffitt Cancer Center Partnership examining communication channels for delivering biobanking education to healthy Hispanics, TBCCN's Spanish-language DVD was tested among Hispanic populations in Tampa, FL and Ponce, PR to assess acceptability among a diverse, yet predominantly Puerto Rican Hispanic population. Methods: The existing Spanish-language biobanking DVD was reviewed by 18 Hispanic community members from Tampa, FL (n=9) and Ponce, PR (n=9) to assess acceptability of content, delivery, tone, and message. Community members from Tampa represented diverse Hispanic sub-groups, while those in Ponce were all Puerto Rican. Feedback from both groups was compared and revisions were made based on common themes. Results: Participants responded favorably to several aspects of the DVD including: the format, Spanish language, visual attractiveness and use of color, description of biobanking procedures and biospecimens, and the use of community member interviews. However, they also identified several areas for enhancement including: shortening the video, slowing down the narration, and reducing the use of scientific language and images. They also reported that the video would be improved by adding an emotional connection that would trigger desire to participate as a healthy donor. Based on these data and preferences, a derivative DVD was developed that maintained the core informational content elements while incorporating community member feedback. New footage was filmed in PR and incorporated into the final version. Edits included shortening and re-narrating the script; replacing scientific/technical language and imagery with lay terms and family images; and including survivor testimonials to build on the emotional connection and importance of biobanking as a healthy individual. Conclusion: Although the original DVD was in Spanish and created for the Tampa community, some elements did not resonate well when tested with a different Hispanic population (predominantly Puerto Rican), highlighting the importance of adapting Spanish educational materials across Hispanic sub-ethnicities. The newly derived DVD discussing biobanking and its importance in cancer research may present an effective way to recruit Hispanics as healthy controls. Future plans include utilizing this DVD in a RCT to examine the most effective communication channel for delivering cancer prevention and biobanking education to Hispanics. Citation Format: Yonaira M. Rivera, Jessica McIntyre, Daianna Adams, Julio Jiménez, Clement Gwede, Susan Vadaparampil, Vani Simmons, Thomas H. Brandon, Cathy D. Meade, Wendy E. González, Himilce Vélez, Gloria Asencio, Cruz M. Nazario, Eida Castro, Teresita Muñoz-Antonia, Gwendolyn P. Quinn. Adaptation of a Spanish-language educational DVD about biobanking for Hispanics in Puerto Rico and Florida. [abstract]. In: Proceedings of the Sixth AACR Conference: The Science of Cancer Health Disparities; Dec 6–9, 2013; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2014;23(11 Suppl):Abstract nr A58. doi:10.1158/1538-7755.DISP13-A58
    Type of Medium: Online Resource
    ISSN: 1055-9965 , 1538-7755
    Language: English
    Publisher: American Association for Cancer Research (AACR)
    Publication Date: 2014
    detail.hit.zdb_id: 2036781-8
    detail.hit.zdb_id: 1153420-5
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
  • 2
    Online Resource
    Online Resource
    American Association for Cancer Research (AACR) ; 2016
    In:  Cancer Epidemiology, Biomarkers & Prevention Vol. 25, No. 3_Supplement ( 2016-03-01), p. A85-A85
    In: Cancer Epidemiology, Biomarkers & Prevention, American Association for Cancer Research (AACR), Vol. 25, No. 3_Supplement ( 2016-03-01), p. A85-A85
    Abstract: Introduction: Cancer health communication efforts can impact beliefs, attitudes, and perceptions, and are important when introducing new concepts. The Institute of Medicine suggests culture has been poorly applied in the context of health communication, and concludes that an adequate consideration of culture requires research beyond traditional variables of race, ethnicity, and socioeconomic status. Specific media approaches have shown improved efficacy for communicating health information to Hispanics. Recent studies indicate face-to-face interactions are the most revered and preferred communication style for health messages. Biobanks are repositories that store biospecimens for research. Healthy control samples from diverse racial groups must be represented in biobanks to better examine genetic and environmental risk factors for diseases such as cancer. However, minorities are underrepresented in biobanks. Our previous outreach activities demonstrated need for empirical evidence on cancer communication modalities with respect to feasibility for implementation, acceptability, and, ultimately, efficacy in producing behavior change among Hispanics. The goal of this project was to examine feasibility of a randomized control trial and the most effective communication channel for delivering cancer prevention and biobanking education to Hispanics. Communication modalities were evaluated based on: participation rates; change in knowledge, attitudes and intention; and enrollment in a biobanking registry. Methods: A total of 252 community members from Tampa, FL and Ponce, PR were randomized to three communication modalities. Standard dissemination {mailed materials} (n=85), Enhanced dissemination {mailed materials with a follow up call} (n=82), and Charla {face-to-face group discussion} (n= 85). Participants received a culturally tailored biobanking DVD and an American Cancer Society cancer prevention brochure. All education was delivered in Spanish. Self-reported data on knowledge, attitudes, intentions, and behavior about biobanking and cancer prevention was collected at baseline and post intervention. After the post- test participants had an option to enroll in a biobanking registry. Results: Analyses were based on those who completed the post-test (Standard n=71, Enhanced n=70, Charla n=40). There was a significant increase in biobanking knowledge from pre to post-test (p & lt;.0001). The increase in biobanking knowledge was greater for the charla group (4.6) than for the standard group (3.1). However, fewer people received the information in the charla group, due to low rates of attendance to the charlas. Attitudes, self-efficacy and cancer prevention knowledge improved across all groups with no significant group differences. Approximately 90% of participants agreed to enroll in the biobanking registry with no significant difference found amongst all groups (p=.53). Conclusion: Delivery of the three communication modalities was feasible. While our data show an increase of knowledge, attitudes and self-efficacy amongst all three conditions, there is a noteworthy increase of biobanking knowledge when the information was delivered in the charla setting. However, the charla condition had the lowest participation rate because several participants did not show up. Thus, although most participants signed up for the biobanking registry once they received the education, without differences between groups, of those assigned to the three conditions, far fewer signed up in the charla condition because they didn't get the education. In designing health education interventions for Hispanics, it is important to consider varied channels for dissemination for specific types of outcomes. Lack of differences between the three modalities suggests culturally tailored education is sufficient to capture the community's intention to participate in research. Citation Format: Jomar Lopez, Wendy Rojas, Jessica McIntyre, Vani Simmons, Susan T. Vadaparampil, Clement Gwede, Steven Sutton, Johanna Corchado, Eida Castro, Julio Jimenez, Thomas H. Brandon, Gwendolyn Quinn. Cancer education on biobanking: Comparing health communication channels for reaching Hispanics. [abstract]. In: Proceedings of the Eighth AACR Conference on The Science of Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; Nov 13-16, 2015; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2016;25(3 Suppl):Abstract nr A85.
    Type of Medium: Online Resource
    ISSN: 1055-9965 , 1538-7755
    Language: English
    Publisher: American Association for Cancer Research (AACR)
    Publication Date: 2016
    detail.hit.zdb_id: 2036781-8
    detail.hit.zdb_id: 1153420-5
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
  • 3
    In: Health Promotion Practice, SAGE Publications, Vol. 13, No. 6 ( 2012-11), p. 807-815
    Abstract: The disproportionate burden of cancer among U.S. Hispanics is well documented. Historically, epidemiologic data on U.S. Hispanics and cancer have aggregated all Hispanics as one homogeneous group without appreciating the diversity of this population with regard to nativity (nationality/geographic origin). The authors report on the initial efforts of a collaborative academic institutional partnership between a minority-serving institution and a National Cancer Institute–designated cancer center to address cancer health disparities in two Hispanic communities in Puerto Rico and Florida. This article outlines the joint Outreach Program’s initial collaborative strategies and activities in community outreach, cancer education, and research that mutually benefit both the Ponce (Puerto Rico) and Tampa (Florida) Hispanic communities. This partnership program used innovative multipronged community-engagement strategies in the two communities to reduce cancer health disparities. Specific projects and lessons learned from three outreach/cancer education projects and two pilot research projects are discussed. The challenges of balancing service and research agendas in communities with disparate levels of resources and infrastructure are summarized to inform future initiatives in this partnership, as well as serve as an example for similar minority-serving institution/cancer center partnerships to reduce cancer health disparities.
    Type of Medium: Online Resource
    ISSN: 1524-8399 , 1552-6372
    Language: English
    Publisher: SAGE Publications
    Publication Date: 2012
    detail.hit.zdb_id: 2036801-X
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
  • 4
    In: Journal of Cancer Education, Springer Science and Business Media LLC, Vol. 26, No. 2 ( 2011-6), p. 322-325
    Type of Medium: Online Resource
    ISSN: 0885-8195 , 1543-0154
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2011
    detail.hit.zdb_id: 2049313-7
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
  • 5
    In: Journal of Cancer Education, Springer Science and Business Media LLC, Vol. 33, No. 4 ( 2018-8), p. 833-841
    Type of Medium: Online Resource
    ISSN: 0885-8195 , 1543-0154
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2018
    detail.hit.zdb_id: 2049313-7
    Location Call Number Limitation Availability
    BibTip Others were also interested in ...
Close ⊗
This website uses cookies and the analysis tool Matomo. More information can be found here...