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  • 1
    Online-Ressource
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    American Association for Cancer Research (AACR) ; 2017
    In:  Cancer Epidemiology, Biomarkers & Prevention Vol. 26, No. 2_Supplement ( 2017-02-01), p. A18-A18
    In: Cancer Epidemiology, Biomarkers & Prevention, American Association for Cancer Research (AACR), Vol. 26, No. 2_Supplement ( 2017-02-01), p. A18-A18
    Kurzfassung: Introduction: Biobanks are repositories that store biospecimens and health information for research. Healthy control samples from diverse racial/ethnic groups must be represented in biobanks to better examine genetic and environmental risk factors for diseases such as cancer. However, the general public appears to be skeptical about the purpose of these repositories, with minority populations being less likely to donate samples. The Ponce School of Medicine-Moffitt Cancer Center Partnership conducted a study to examine communication channels for delivering biobanking education to healthy Hispanics. The purpose of this article is to describe the successful strategies used during the recruitment process. Methods: The Outreach Core recruited community members (n=254) in Ponce, Puerto Rico and Tampa, Florida using a variety of in-person and media-based approaches. In-person strategies involved staffing booths at community events targeted to Hispanics such as health fairs, American Cancer Society Relay for Life, and educational charlas. Media-based strategies included: the dissemination of flyers at trusted sites in the community (e.g., churches, markets and other community gathering places) and advertising through Spanish language media channels (e.g.,radio talk shows, television programs, newspapers and the project website). Electronic flyers were also shared through Facebook and sent to community partners. Results: At Ponce Health Sciences University (PHSU), word-of-mouth (WOM) was the most effective recruitment strategy, whereby 85 (64.4%) participants enrolled. The second most effective recruitment strategy was the dissemination of flyers, as twenty-five (18.9%) participants enrolled. At Moffitt Cancer Center, the most successful strategy reported was WOM (57.6%). Participation at Moffitt events was reported as the second most effective strategy, with 28 (22.4%) participants enrolled. Overall, the most effective recruitment strategy at both sites was WOM, with 157 (61.1%) participants enrolled. Conclusion: Mistrust is a barrier for research participation amongst Hispanics. Of the recruitment strategies mentioned, WOM and attending community events may be the most effective method to increase trust within Hispanic communities. Overall, this study shows that building trust in the minority community may be the most important first step towards effective recruitment. Citation Format: Jomar López, Cynthia Cortes, Jessica McIntyre, Eida Castro, Clement Gwede, Susan Vadaparampil, Vani Simmons, Thomas Brandon, Gwendolyn Quinn, Julio Jiménez. Effective strategies to recruit Hispanics into a biobanking study in Puerto Rico and Florida. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A18.
    Materialart: Online-Ressource
    ISSN: 1055-9965 , 1538-7755
    Sprache: Englisch
    Verlag: American Association for Cancer Research (AACR)
    Publikationsdatum: 2017
    ZDB Id: 2036781-8
    ZDB Id: 1153420-5
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 2
    In: Supportive Care in Cancer, Springer Science and Business Media LLC, Vol. 23, No. 4 ( 2015-4), p. 967-975
    Materialart: Online-Ressource
    ISSN: 0941-4355 , 1433-7339
    Sprache: Englisch
    Verlag: Springer Science and Business Media LLC
    Publikationsdatum: 2015
    ZDB Id: 1463166-0
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 3
    Online-Ressource
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    Springer Science and Business Media LLC ; 2018
    In:  Journal of Cancer Education Vol. 33, No. 1 ( 2018-2), p. 12-20
    In: Journal of Cancer Education, Springer Science and Business Media LLC, Vol. 33, No. 1 ( 2018-2), p. 12-20
    Materialart: Online-Ressource
    ISSN: 0885-8195 , 1543-0154
    Sprache: Englisch
    Verlag: Springer Science and Business Media LLC
    Publikationsdatum: 2018
    ZDB Id: 2049313-7
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 4
    Online-Ressource
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    American Association for Cancer Research (AACR) ; 2010
    In:  Cancer Research Vol. 70, No. 8_Supplement ( 2010-04-15), p. 884-884
    In: Cancer Research, American Association for Cancer Research (AACR), Vol. 70, No. 8_Supplement ( 2010-04-15), p. 884-884
    Kurzfassung: An alliance between a patient's cultural identity and a physician's cultural competency can improve patient physician communication and ultimately reduce health disparities[1]. However, communication barriers in the patient-physician relationship contribute to health disparities in the cancer care setting.[2] Providers are often unaware of their skill level and perceptions and may believe they do not need improvement. 2 This study sought to develop and evaluate a brief intervention for oncology care providers to improve cultural communication related to Hispanic patients and families. Oncologists at a major cancer center were surveyed to identify which of the nine AHRQ cultural competency techniques they desired to receive more training (n= 72). 66% selected, “I am interested in receiving information on how to communicate difficult issues such as terminal illness and controversial diagnosis, in a way that is respectful to Hispanic culture.” A workshop was held for 55 staff containing a didactic lecture from an Hispanic provider addressing culture, terminal illness, and communication strategies. A panel of interpreters, translators, and bi-lingual providers answered questions from the audience and a group discussion was held. A seven item pre-test was administered prior to the workshop, followed by a three item post-test. 62% agreed the panel discussion was helpful in developing techniques for communicating bad news to Spanish speaking patients. At baseline 20% of participants felt very comfortable with their cultural communication skills, however, only 3% felt very comfortable after attending the intervention. At pre-test 25% reported having very little knowledge about the cultural context of breaking bad news to Hispanic patients, yet at post-test 0% reported having very little knowledge. These data suggest the training was successful overall, as well as aiding in identifying providers who previously had a high level of comfort based on misperceptions of good cultural communication and through the workshop realized they needed improvement. [1] Brach, Cindy, Fraser, Irene Can Cultural Competency Reduce Racial And Ethnic Health Disparities? A Review And Conceptual Model Med Care Res Rev 2000 57: 181-217 [2] Saha, Somnath, Arbelaez, Jose J., Cooper, Lisa A. Patient-Physician Relationships and Racial Disparities in the Quality of Health Care Am J Public Health 2003 93: 1713-1719 Citation Format: {Authors}. {Abstract title} [abstract]. In: Proceedings of the 101st Annual Meeting of the American Association for Cancer Research; 2010 Apr 17-21; Washington, DC. Philadelphia (PA): AACR; Cancer Res 2010;70(8 Suppl):Abstract nr 884.
    Materialart: Online-Ressource
    ISSN: 0008-5472 , 1538-7445
    RVK:
    RVK:
    Sprache: Englisch
    Verlag: American Association for Cancer Research (AACR)
    Publikationsdatum: 2010
    ZDB Id: 2036785-5
    ZDB Id: 1432-1
    ZDB Id: 410466-3
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 5
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    American Association for Cancer Research (AACR) ; 2017
    In:  Cancer Epidemiology, Biomarkers & Prevention Vol. 26, No. 2_Supplement ( 2017-02-01), p. A64-A64
    In: Cancer Epidemiology, Biomarkers & Prevention, American Association for Cancer Research (AACR), Vol. 26, No. 2_Supplement ( 2017-02-01), p. A64-A64
    Kurzfassung: In the United States, the Hispanic population suffers from major health disparities relative to non-Hispanic Whites. For example, this population shows low participation rates in cancer screening and other prevention programs, which indicates the need to design cancer educational programs tailored to Hispanics. The health status and health behaviors of today's Hispanic youth will play a central role in shaping the long-term health and health care needs not only of Hispanics in the United States but also of Hispanic at large. Puerto Rico currently has limited opportunities to educate young people on cancer prevention and control. The purpose of this study was to identify cancer prevention education needs, and corresponding education delivery strategies, to be implemented in cancer prevention programs targeting high school students in Puerto Rico. The study employed a mixed sequential-exploratory design under a Community Based Participatory Research approach (CBPR). As such, cancer prevention education needs and delivery strategies were identified through group discussions held in years 2013-2014 as part of two community forums with stakeholders (n=66) representing various community sectors (e.g. cancer patients/survivors, school teachers, parents, etc. During a second phase, in order to achieve a deeper understanding of the qualitative study' findings, a quantitative study was conducted. The qualitative information collected through group discussions was used to develop a survey administered to 85 high school health teachers in Puerto Rico. Content analysis was on verbatim transcripts (group discussions) and descriptive statistics applied for quantitative data (survey). Data triangulation and interpretation was done in collaboration with the Community Advisory Panel (CAP). The CAP was developed specifically to collaborate in the process of cancer prevention activities development, implementation and outreach research data interpretation. Themes from qualitative analysis fell into 5 main categories for children and adolescents: Importance of cancer prevention education, reaffirmation of need for disseminating cancer prevention education efforts, identification of cancer education prevention strategies, identification of resources to promote cancer prevention and, potential challenges for the implementation of cancer prevention education efforts. Survey results showed 100% of teachers agreed on the importance of shifting cancer prevention education efforts to early ages, 57% reported it was important to integrate cancer prevention education topics in high school curriculums, 74% identified the need for developing cancer prevention education and 60% identified the need to bring external resources in the form of workshops to teachers. Study findings highlights the need to develop cancer prevention education efforts for children and adolescents in Puerto Rican schools. Citation Format: Julio Jimenez, Jacob Matos, Eida Castro, Axel Ramos, Cynthia Cortes, Gwendolyn P. Quinn, Thomas Brandon, Clement K. Gwede, Susan Vadaparampil, Vani Simmons, Jessica McIntyre, Gloria Asencio. Community and Academia: Identifying strategies for cancer prevention education in Puerto Rico. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A64.
    Materialart: Online-Ressource
    ISSN: 1055-9965 , 1538-7755
    Sprache: Englisch
    Verlag: American Association for Cancer Research (AACR)
    Publikationsdatum: 2017
    ZDB Id: 2036781-8
    ZDB Id: 1153420-5
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 6
    Online-Ressource
    Online-Ressource
    American Association for Cancer Research (AACR) ; 2017
    In:  Cancer Epidemiology, Biomarkers & Prevention Vol. 26, No. 2_Supplement ( 2017-02-01), p. A17-A17
    In: Cancer Epidemiology, Biomarkers & Prevention, American Association for Cancer Research (AACR), Vol. 26, No. 2_Supplement ( 2017-02-01), p. A17-A17
    Kurzfassung: Introduction: The disproportionate burden of cancer among U.S. Hispanics is well documented. The Ponce School of Medicine and Moffitt Cancer Center Partnership, is a collaborative academic institutional partnership between a minority-serving institution and an NCI-designated cancer center focused on reducing cancer health disparities among Hispanics in Tampa, Florida and Ponce, Puerto Rico. Within the Partnership's structure, the Outreach Core combines community-based participatory research and social marketing approaches to deliver planned, community-focused, educational activities designed to increase awareness of cancer prevention, early detection, treatment programs, and cancer research for Hispanics in Tampa, FL, and Ponce, PR. This abstract describes the community engagement strategies used to improve recognition and trust in minority and underserved communities. Methods: The strategies for impacting health disparities and achieving the goals of the Outreach Core included forming a community advisory panel, building relationships with existing community-academic partnerships, engaging new partners, appearances at health-oriented events, presentations to local community leaders, community forums and “branding” our educational events. These activities take place in Tampa, FL and Ponce, PR. Results: During the past four years we have made significant progress toward achieving our goals by: 1) establishing quarterly meetings with a community advisory panel at each site; 2) maintaining 32 community partners; 3) successful “branding” of our educational events (e.g. ¡Salud! Serie de charlas, Latinos y el cancer, Hablemos de cáncer); 4) conducting cancer education events in Tampa n=9 and PR n=8; 6) increasing access to cancer screening opportunities by providing free health screenings at events and linkages to community resources; 5) recruited over 300 participants for biobanking studies. Conclusion: Community outreach and engagement strategies, in particular “branding” and building trust within the community, may be used effectively for participant recruitment and for delivery of important population-focused messages. This collaborative approach has worked well as we continue to experience an increase in attendance at our events. The two Hispanic communities value language-appropriate and culturally relevant cancer education, and their participation and feedback guides the organization of future events and creates trust for participation in future research studies. Citation Format: Jessica McIntyre, Cynthia Cortes, Jomar Lopez, Eida Castro, Clement Gwede, Susan Vadaparampil, Vani Simmons, Thomas Brandon, Julio Jimenez, Gwendolyn Quinn. Outreach efforts to reduce cancer disparities via a partnership between the Ponce Health Sciences University and the Moffitt Cancer Center. [abstract]. In: Proceedings of the Ninth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2016 Sep 25-28; Fort Lauderdale, FL. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2017;26(2 Suppl):Abstract nr A17.
    Materialart: Online-Ressource
    ISSN: 1055-9965 , 1538-7755
    Sprache: Englisch
    Verlag: American Association for Cancer Research (AACR)
    Publikationsdatum: 2017
    ZDB Id: 2036781-8
    ZDB Id: 1153420-5
    Standort Signatur Einschränkungen Verfügbarkeit
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