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  • 1
    Online-Ressource
    Online-Ressource
    Support Needs of Children with Autism Spectrum Disorders: Implications for Their Assessment
    MDPI AG ; 2023
    In:  Behavioral Sciences Vol. 13, No. 10 ( 2023-09-24), p. 793-
    Details
    In: Behavioral Sciences, MDPI AG, Vol. 13, No. 10 ( 2023-09-24), p. 793-
    Kurzfassung: The construct of support needs has become a key aspect for the diagnostics, classification, and interventional management of autism spectrum disorders (ASDs). However, instruments specifically designed to assess support needs in this population are not available. Currently, the Supports Intensity Scale for Children (SIS-C), which could be administered to assess students with any type of intellectual disability (ID), is the only valid tool able to assess support needs in Spain. Our aim was to verify whether the SIS-C is useful for assessing the support needs of students with ASD, regardless of whether or not they present ID. The participants were subdivided into two groups. One group included students with ASD and ID (n = 248), and the other comprised participants with ASD without an ID (n = 44). The results of the two groups were compared with those reported in the original validation sample of the SIS-C, which involved participants with ID without ASD (n = 566). The results showed that this scale could be useful for assessing support needs in the three subgroups, but it appeared that different standardized norms based on the characteristics of each specific population would be appropriate.
    Materialart: Online-Ressource
    ISSN: 2076-328X
    URL: Article
    DOI: 10.3390/bs13100793
    Sprache: Englisch
    Verlag: MDPI AG
    Publikationsdatum: 2023
    ZDB Id: 2651997-5
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  • 2
    Online-Ressource
    Online-Ressource
    Operationalisation of quality of life for students with intellectual and developmental disabilities to improve their inclusion
    Elsevier BV ; 2021
    In:  Research in Developmental Disabilities Vol. 119 ( 2021-12), p. 104093-
    Details
    In: Research in Developmental Disabilities, Elsevier BV, Vol. 119 ( 2021-12), p. 104093-
    Materialart: Online-Ressource
    ISSN: 0891-4222
    URL: Article
    DOI: 10.1016/j.ridd.2021.104093
    Sprache: Englisch
    Verlag: Elsevier BV
    Publikationsdatum: 2021
    ZDB Id: 1500714-5
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 3
    Online-Ressource
    Online-Ressource
    A new scale for measuring quality of life in acquired brain injury
    Springer Science and Business Media LLC ; 2019
    In:  Quality of Life Research Vol. 28, No. 3 ( 2019-3), p. 801-814
    Details
    In: Quality of Life Research, Springer Science and Business Media LLC, Vol. 28, No. 3 ( 2019-3), p. 801-814
    Materialart: Online-Ressource
    ISSN: 0962-9343 , 1573-2649
    URL: Article
    DOI: 10.1007/s11136-018-2047-5
    Sprache: Englisch
    Verlag: Springer Science and Business Media LLC
    Publikationsdatum: 2019
    ZDB Id: 2008960-0
    SSG: 5,1
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  • 4
    Online-Ressource
    Online-Ressource
    Impact of COVID ‐19 on the burden of care of families of people with intellectual and developmental disabilities
    Wiley ; 2022
    In:  Journal of Applied Research in Intellectual Disabilities Vol. 35, No. 2 ( 2022-03), p. 577-586
    Details
    In: Journal of Applied Research in Intellectual Disabilities, Wiley, Vol. 35, No. 2 ( 2022-03), p. 577-586
    Kurzfassung: This study analysed the impact that COVID‐19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method Data on 323 family members ( M  = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing difficulties experienced and service provision during lockdown. Results Many families (66.3%) have seen their level of stress increased during lockdown because of, among other reasons, a greater burden of care. Difficulties were associated with the closure and changes in disability‐related services. Families of people with extensive support needs have generally experienced greater difficulties. Conclusion Support services should have been considered essential services during lockdown. The failure to receive support has resulted in excessive burden on families, who had to assume a multitude of roles to support their family member with intellectual and developmental disability.
    Materialart: Online-Ressource
    ISSN: 1360-2322 , 1468-3148
    URL: Issue
    URL: Article
    DOI: 10.1111/jar.v35.2
    DOI: 10.1111/jar.12969
    Sprache: Englisch
    Verlag: Wiley
    Publikationsdatum: 2022
    ZDB Id: 2030830-9
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  • 5
    Online-Ressource
    Online-Ressource
    Reading Lessons Planning With Students With Intellectual and Developmental Disabilities in Mind: Needs-Based Assessment Proposal
    American Association on Intellectual and Developmental Disabilities (AAIDD) ; 2023
    In:  Intellectual and Developmental Disabilities Vol. 61, No. 5 ( 2023-10-01), p. 399-425
    Details
    In: Intellectual and Developmental Disabilities, American Association on Intellectual and Developmental Disabilities (AAIDD), Vol. 61, No. 5 ( 2023-10-01), p. 399-425
    Kurzfassung: This study addresses the need to reinforce the reading learning of students with intellectual and developmental disabilities (IDD) in general education classrooms. A standardized way of assessing support needs in reading (SNr) from the teachers’ perspective is proposed. The objectives were (i) to develop an instrument and evaluate its properties and (ii) to preliminarily assess the support needs in reading of students with IDD. Participants were 86 Chilean elementary school teachers who responded about the support needs of their own students. The instrument assesses three dimensions (i.e., representation, engagement, and action and expression). Analyses showed excellent preliminary evidence of validity and reliability. Preliminarily identified support needs suggest that students need more support in representation. Practical and research implications are discussed.
    Materialart: Online-Ressource
    ISSN: 1934-9556 , 1934-9491
    URL: Article
    DOI: 10.1352/1934-9556-61.5.399
    Sprache: Englisch
    Verlag: American Association on Intellectual and Developmental Disabilities (AAIDD)
    Publikationsdatum: 2023
    SSG: 5,2
    Standort Signatur Einschränkungen Verfügbarkeit
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  • 6
    Online-Ressource
    Online-Ressource
    International perspectives and trends in research on inclusive education: a systematic review
    Informa UK Limited ; 2019
    In:  International Journal of Inclusive Education Vol. 23, No. 12 ( 2019-12-02), p. 1277-1295
    Details
    In: International Journal of Inclusive Education, Informa UK Limited, Vol. 23, No. 12 ( 2019-12-02), p. 1277-1295
    Materialart: Online-Ressource
    ISSN: 1360-3116 , 1464-5173
    URL: Article
    DOI: 10.1080/13603116.2018.1445304
    Sprache: Englisch
    Verlag: Informa UK Limited
    Publikationsdatum: 2019
    ZDB Id: 2010622-1
    SSG: 5,3
    Standort Signatur Einschränkungen Verfügbarkeit
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    Online-Ressource
  • 7
    Online-Ressource
    Online-Ressource
    Development and Validation of Standardized Quality of Life Measures for Persons with IDD
    MDPI AG ; 2023
    In:  Behavioral Sciences Vol. 13, No. 6 ( 2023-05-30), p. 452-
    Details
    In: Behavioral Sciences, MDPI AG, Vol. 13, No. 6 ( 2023-05-30), p. 452-
    Kurzfassung: The implications of the individual quality of life (QoL) model of Schalock and Verdugo have made it the most cited QoL model in the field of disability. The QoL model is understood as a conceptual and applied framework for action that allows the materialization of the rights of persons with disabilities through the multidimensional assessment of these persons using QoL indicators, and the development of actions guided by these values and supported by evidence. The purpose of this work is to present the foundations of this model and offer a step-by-step guide to developing standardized QoL assessment instruments and providing evidence that supports their use to implement the model in practice. This paper explores relevant topics such as: (a) the need to identify critical population groups and contexts; (b) the identification of QoL indicators for said groups and contexts; (c) the development of items focused on the assessment of personal outcomes; (d) provision to the items of validity evidence based on content and pilot measure design and (e) validation process to gather evidence that supports the uses of the instrument. Last, a framework that allows using the evidence on personal outcomes as disaggregated and aggregated data at different levels of the social system is presented, thus highlighting the role of the model as a change agent regarding individuals, organizations and schools, and public policy.
    Materialart: Online-Ressource
    ISSN: 2076-328X
    URL: Article
    DOI: 10.3390/bs13060452
    Sprache: Englisch
    Verlag: MDPI AG
    Publikationsdatum: 2023
    ZDB Id: 2651997-5
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  • 8
    Online-Ressource
    Online-Ressource
    Examining the Suitability of the List of Indicators Describing Age-Related Typical Support Needs
    MDPI AG ; 2021
    In:  International Journal of Environmental Research and Public Health Vol. 18, No. 2 ( 2021-01-18), p. 764-
    Details
    In: International Journal of Environmental Research and Public Health, MDPI AG, Vol. 18, No. 2 ( 2021-01-18), p. 764-
    Kurzfassung: The list of indicators is a form of training material used for the Supports Intensity Scale—Children’s version (SIS-C). It is aimed at helping interviewers distinguishing between extraordinary and age-related typical support needs in children with intellectual and developmental disabilities (IDD) when implementing the SIS-C, and thus improve supports planning. The aim of this study is to adapt and test the list of indicators’ content validity and rating scale’s functioning in Spain. A total of 222 general education teachers reported their agreement with each indicator description using a 5-point rating scale. A total of 353 of 366 indicators showed evidence of content validity, whereas analyses on the rating scale highlighted the necessity of subsuming one of the scale categories within another. The need for developing research-based training materials to develop training programs on the use of the SIS-C to support decision-making concerning supports planning with students with IDD, the relevance of using the latest methodological approaches available when required, and future lines of research are discussed.
    Materialart: Online-Ressource
    ISSN: 1660-4601
    URL: Article
    DOI: 10.3390/ijerph18020764
    Sprache: Englisch
    Verlag: MDPI AG
    Publikationsdatum: 2021
    ZDB Id: 2175195-X
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  • 9
    Online-Ressource
    Online-Ressource
    Predictive Factors of Self-Reported Quality of Life in Acquired Brain Injury: One-Year Follow-Up
    MDPI AG ; 2021
    In:  International Journal of Environmental Research and Public Health Vol. 18, No. 3 ( 2021-01-21), p. 927-
    Details
    In: International Journal of Environmental Research and Public Health, MDPI AG, Vol. 18, No. 3 ( 2021-01-21), p. 927-
    Kurzfassung: Background: The sequelae and disabilities that follow an acquired brain injury (ABI) may negatively affect quality of life (QoL). The main objective of the study is to describe the QoL after an ABI and identify the predictors of a better QoL. Methods: Prospective cohort study with follow-up measurement after one-year. The sample comprised 203 adults with ABIs (64% male) aged 18–86 years (M = 53.01, SD = 14.44). Stroke was the main etiology of the injury (55.7%), followed by a TBI (32.8%), and the average time since injury was 8 years (M = 8.25, SD = 7.83, range = 0.5–47.5). Patients assessed their QoL through the scale Calidad de Vida en Daño Cerebral (CAVIDACE self-reported version; “quality of life in brain injury” in English), an ABI-specific tool based on the eight-domain QoL model. Other variables measured were: depression, self-awareness, community integration, resilience, and social support at baseline and one-year follow-up. Results: The studied factors showed few significant changes over time. The analyses showed statistically significant differences in QoL scores in several sociodemographic (age, civil status, education, legal capacity, and dependency), injury-related (time, location, and comorbidity), rehabilitation, and personal-social variables (self-awareness, depression, social support, resilience, and community integration). The levels of dependency, depression, and satisfaction with social support were independent predictors of the total QoL score one-year follow-up. Conclusions: QoL after ABI depends on multiple elements that must be considered. There are factors such as satisfaction with social support, depression, community integration, and resilience that must be monitored throughout the rehabilitation process.
    Materialart: Online-Ressource
    ISSN: 1660-4601
    URL: Article
    DOI: 10.3390/ijerph18030927
    Sprache: Englisch
    Verlag: MDPI AG
    Publikationsdatum: 2021
    ZDB Id: 2175195-X
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  • 10
    Online-Ressource
    Online-Ressource
    Toward a Better “Person–Environment Fit” through Items Calibration of the SIS-C
    MDPI AG ; 2020
    In:  International Journal of Environmental Research and Public Health Vol. 17, No. 10 ( 2020-05-15), p. 3471-
    Details
    In: International Journal of Environmental Research and Public Health, MDPI AG, Vol. 17, No. 10 ( 2020-05-15), p. 3471-
    Kurzfassung: The Supports Intensity Scale–Children’s Version (SIS-C) is the only available tool to assess extraordinary support needs for children and adolescents with intellectual disability. In past years, several works have proclaimed the need for its ongoing improvement as a measurement instrument. To contribute to this line of research, the goal of this work is to analyze the reliability of the SIS-C and its usefulness to distinguish between different levels of intensity of support needs. To address this, 814 children and adolescents with intellectual disability (M = 11.13 years; SD = 3.41) were assessed using the SIS-C Spanish version. Item response theory analyses were conducted to estimate latent scores and assess measurement quality along the support needs continuum. The SIS-C items showed good overall discrimination and information values, and none showed problems that required their removal or modification. However, all the scales composing the SIS-C showed problems in discerning high levels of intensity of support needs, especially for children and adolescents with severe/profound intellectual disability. This ceiling effect may be an obstacle for both research and practice involving the SIS-C. Implications for research and practice are discussed, and future lines of research for improving the SIS-C are provided.
    Materialart: Online-Ressource
    ISSN: 1660-4601
    URL: Article
    DOI: 10.3390/ijerph17103471
    Sprache: Englisch
    Verlag: MDPI AG
    Publikationsdatum: 2020
    ZDB Id: 2175195-X
    Standort Signatur Einschränkungen Verfügbarkeit
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