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  • 1
    In: European Journal of Cancer Prevention, Ovid Technologies (Wolters Kluwer Health), Vol. 27, No. 6 ( 2018-11), p. 539-545
    Abstract: Guidelines recommend early colonoscopy for individuals with a positive family history of colorectal cancer (CRC), but little is known about the utilization of colonoscopy and the frequency of colorectal neoplasms among younger affected individuals in Germany. The aim of this study was to determine the utilization of colonoscopy and the frequency of colorectal neoplasms in this risk group. We conducted a cross-sectional study in a general practice setting. Patients aged 40–54 years with at least one first-degree relative with CRC were identified, counseled on their increased risk, and referred to colonoscopy if they decided to undergo this procedure. We assessed the reported utilization of colonoscopy before study participation with a questionnaire and obtained results of colonoscopies performed during the study period from colonoscopy reports. Out of 484 patients with a positive family history of CRC, 191 (39.5%) fulfilled the inclusion criteria and participated in the study: 54% reported that at least one colonoscopy had been performed before study participation. Out of 191 participants, 86 (45%) underwent a colonoscopy during study period. No CRC was found, but 16.3% had any adenoma, and 7.0% had advanced adenomas. Overall, 155 (82%) study participants underwent a colonoscopy either before or during the study period. The utilization of colonoscopies among participants was remarkably high even before study participation. This rate increased up to 82% after counseling by general practitioners. A relevant number of participants had (advanced) adenomas. It appears worthwhile to involve general practitioners in identifying and counseling younger individuals with familial risk for CRC.
    Type of Medium: Online Resource
    ISSN: 0959-8278
    Language: English
    Publisher: Ovid Technologies (Wolters Kluwer Health)
    Publication Date: 2018
    detail.hit.zdb_id: 1137033-6
    detail.hit.zdb_id: 2025799-5
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  • 2
    In: Family Practice, Oxford University Press (OUP), Vol. 34, No. 1 ( 2017-02), p. 30-35
    Type of Medium: Online Resource
    ISSN: 0263-2136 , 1460-2229
    Language: English
    Publisher: Oxford University Press (OUP)
    Publication Date: 2017
    detail.hit.zdb_id: 1484852-1
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  • 3
    Online Resource
    Online Resource
    Georg Thieme Verlag KG ; 2018
    In:  Das Gesundheitswesen Vol. 80, No. 10 ( 2018-10), p. 878-881
    In: Das Gesundheitswesen, Georg Thieme Verlag KG, Vol. 80, No. 10 ( 2018-10), p. 878-881
    Abstract: Hintergrund Bei familiärem Risiko für Darmkrebs wird eine Früherkennungskoloskopie bereits vor dem Alter von 55 Jahren empfohlen. Ziel der Untersuchung war die Befragung von Betroffenen im Alter von 40 bis 54 Jahren, ob sie sich bereits zur Früherkennung informiert haben und durch welche Institutionen oder Medien sie informiert werden möchten. Methode Analyse von Daten aus einer Querschnittstudie: Personen mit familiärem Risiko für Darmkrebs wurden hinsichtlich der genannten Fragestellungen schriftlich im hausärztlichen Setting befragt. Ergebnisse In der Studie nahmen 191 Personen mit familiärem Risiko für Darmkrebs teil: 59,6% hatten sich bereits zur Früherkennung von Darmkrebs informiert, davon 67,0% über die ärztliche Versorgung. Die Mehrzahl wünscht sich Informationen zur Darmkrebsfrüherkennung vom Hausarzt (98,9% trifft vollständig zu/trifft eher zu) sowie von der Krankenversicherung (74,5% trifft vollständig zu/trifft eher zu). Eher keine Informationen wünschen sich Teilnehmer von öffentlichen Einrichtungen wie dem Gesundheitsamt (69,5% trifft nicht zu/trifft eher nicht zu) und privaten Organisationen wie Selbsthilfegruppen (80,9% trifft nicht zu/trifft eher nicht zu). Etwa die Hälfte bevorzugt Informationen über das Fernsehen. Männer wünschen sich häufiger als Frauen Informationen über das Internet (trifft vollständig zu/trifft eher zu: 66,7 vs. 43,8%) oder Zeitungen und Zeitschriften (trifft vollständig zu/trifft eher zu: 53,6 vs. 41,8%). Schlussfolgerung Eine im hausärztlichen Setting durchgeführte Befragung ergab, dass sich bereits mehr als die Hälfte der betroffenen Personen zur Früherkennung von Darmkrebs informiert hatten. Das Setting der Befragung kann dazu beigetragen haben, dass der Hausarzt bei den bevorzugten Informationsquellen an erster Stelle genannt wurde. Weiterhin zeigen diese Ergebnisse einer deutschlandweit einzigartigen Kohorte im Alter von 40 bis 54 Jahren mit familiärem Risiko für Darmkrebs, dass das bisherige Informationsverhalten nicht überdurchschnittlich ausgeprägt war und dass Männer und Frauen durchaus auf unterschiedlichen Wegen angesprochen werden können.
    Type of Medium: Online Resource
    ISSN: 0941-3790 , 1439-4421
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    Language: German
    Publisher: Georg Thieme Verlag KG
    Publication Date: 2018
    detail.hit.zdb_id: 1101426-X
    SSG: 20,1
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  • 4
    Online Resource
    Online Resource
    Springer Science and Business Media LLC ; 2020
    In:  BMC Family Practice Vol. 21, No. 1 ( 2020-12)
    In: BMC Family Practice, Springer Science and Business Media LLC, Vol. 21, No. 1 ( 2020-12)
    Abstract: Patient information materials and decision aids are essential tools for helping patients make informed decisions and share in decision-making. The aim of this study was to investigate the quality of the written patient information materials available at general practices in Styria, Austria. Methods We asked general practitioners to send in all patient information materials available in their practices and to answer a short questionnaire. We evaluated the materials using the Ensuring Quality Information for Patients (EQIP-36) instrument. Results A total of 387 different patient information materials were available for quality assessment. These materials achieved an average score of 39 out of 100. The score was below 50 for 78% of all materials. There was a significant lack of information on the evidence base of recommendations. Only 9 % of the materials provided full disclosure of their evidence sources. We also found that, despite the poor quality of the materials, 89% of general practitioners regularly make active use of them during consultations with patients. Conclusion Based on international standards, the quality of patient information materials available at general practices in Styria is poor. The vast majority of the materials are not suitable as a basis for informed decisions by patients. However, most Styrian general practitioners use written patient information materials on a regular basis in their daily clinical practice. Thus, these materials not only fail to help raise the health literacy of the general population, but may actually undermine efforts to enable patients to make shared informed decisions. To increase health literacy, it is necessary to make high quality, evidence-based and easy-to-understand information material available to patients and the public. For this, it may be necessary to set up a centralized and independent clearinghouse.
    Type of Medium: Online Resource
    ISSN: 1471-2296
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2020
    detail.hit.zdb_id: 2041495-X
    detail.hit.zdb_id: 3107315-3
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  • 5
    In: BMJ Open, BMJ, Vol. 10, No. 10 ( 2020-10), p. e037158-
    Abstract: To review systematically the past 10 years of research activity into the healthcare experiences (HCX) of patients with chronic heart failure (CHF) in Germany, in order to identify research foci and gaps and make recommendations for future research. Design In this scoping review, six databases and grey literature sources were systematically searched for articles reporting HCX of patients with CHF in Germany that were published between 2008 and 2018. Extracted results were summarised using quantitative and qualitative descriptive analysis. Results Of the 18 studies (100%) that met the inclusion criteria, most were observational studies (60%) that evaluated findings quantitatively (60%). HCX were often concerned with patient information, global satisfaction as well as relationships and communication between patients and providers and generally covered ambulatory care, hospital care and rehabilitation services. Overall, the considerable heterogeneity of the included studies’ outcomes only permitted relatively trivial levels of synthesis. Conclusion In Germany, research on HCX of patients with CHF is characterised by missing, inadequate and insufficient information. Future research would benefit from qualitative analyses, evidence syntheses, longitudinal analyses that investigate HCX throughout the disease trajectory, and better reporting of sociodemographic data. Furthermore, research should include studies that are based on digital data, reports of experiences gained in under-investigated yet patient-relevant healthcare settings and include more female subjects.
    Type of Medium: Online Resource
    ISSN: 2044-6055 , 2044-6055
    Language: English
    Publisher: BMJ
    Publication Date: 2020
    detail.hit.zdb_id: 2599832-8
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  • 6
    In: BMC Cancer, Springer Science and Business Media LLC, Vol. 15, No. 1 ( 2015-12)
    Type of Medium: Online Resource
    ISSN: 1471-2407
    Language: English
    Publisher: Springer Science and Business Media LLC
    Publication Date: 2015
    detail.hit.zdb_id: 2041352-X
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  • 7
    In: BMJ Open, BMJ, Vol. 9, No. 2 ( 2019-02), p. e025685-
    Abstract: Chronic heart failure (CHF) is a heterogeneous condition requiring complex treatment from diverse healthcare services. An increasingly holistic understanding of healthcare has resulted in contextual factors such as perceived quality of care, as well as patients’ acceptance, preferences and subjective expectations of health services, all gaining in importance. How patients with CHF experience the use of healthcare services has not been studied within the scope of a systematic review in a German healthcare context. The aim of this scoping review is therefore to review systematically the experiences of patients affected by CHF with healthcare services in Germany in the literature and to map the research foci. Further objectives are to identify gaps in evidence, develop further research questions and to inform decision makers concerned with improving healthcare of patients living with CHF. Methods and analysis This scoping review will be based on a broad search strategy involving systematic and comprehensive electronic database searches in MEDLINE, EMBASE, PsycINFO, PSYNDEX, CINAHL and Cochrane’s Database of Systematic Reviews, grey literature searches, as well as hand searches through reference lists and non-indexed key journals. The methodological procedure will be based on an established six-stage framework for conducting scoping reviews that includes two independent reviewers. Data will be systematically extracted, qualitatively and quantitatively analysed and summarised both narratively and visually. To ensure the research questions and extracted information are meaningful, a patient representative will be involved. Ethics and dissemination Ethical approval will not be required to conduct this review. Results will be disseminated through a clearly illustrated report that will be part of a wider research project. Furthermore, it is intended that the review’s findings should be made available to relevant stakeholders through conference presentations and publication in peer-reviewed journals (knowledge transfer). Protocol registration in PROSPERO is not applicable for scoping reviews.
    Type of Medium: Online Resource
    ISSN: 2044-6055 , 2044-6055
    Language: English
    Publisher: BMJ
    Publication Date: 2019
    detail.hit.zdb_id: 2599832-8
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  • 8
    In: Zeitschrift für Gastroenterologie, Georg Thieme Verlag KG, Vol. 56, No. 12 ( 2018-12), p. 1499-1506
    Abstract: Background Colorectal cancer is one leading cause of cancer-related morbidity and mortality. Its prognosis depends largely on tumour stage at diagnosis. Migration status was associated with late stage at diagnosis in some studies, yet results are inconsistent. Methods The cross-sectional study “The Diagnostics of Colorectal Carcinoma in Migrants and Non-Migrants in Germany” (KoMigra) investigated the association between migration background and tumour stage of colorectal cancer at diagnosis in a large German urban area. Patient variables were collected via a survey translated into nine languages. Data on tumour stage were extracted from medical records. Results 437 patients could be recruited for analysis. Explorative logistic regression yielded no significant difference for tumour stage “I” versus “II-IV” according to the tumour classification “Union Internationale Contre le Cancer” (UICC) between migrants and non-migrants. Although the odds of a higher tumour stage were consistently higher in migrants than non-migrants, the effect estimates had wide confidence intervals. In descriptive analyses, migrants reported symptoms more often and for longer time than non-migrants. This was especially true for patients with poor proficiency of German. Conclusions Migration background was not significantly associated with advanced tumour stage at diagnosis. However, the effect of poor language proficiency should be explored further.
    Type of Medium: Online Resource
    ISSN: 0044-2771 , 1439-7803
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    Language: English
    Publisher: Georg Thieme Verlag KG
    Publication Date: 2018
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  • 9
    Online Resource
    Online Resource
    Elsevier BV ; 2014
    In:  Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen Vol. 108, No. 5-6 ( 2014), p. 283-292
    In: Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen, Elsevier BV, Vol. 108, No. 5-6 ( 2014), p. 283-292
    Type of Medium: Online Resource
    ISSN: 1865-9217
    RVK:
    Language: German
    Publisher: Elsevier BV
    Publication Date: 2014
    detail.hit.zdb_id: 2413601-3
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  • 10
    Online Resource
    Online Resource
    Georg Thieme Verlag KG ; 2018
    In:  Zeitschrift für Gastroenterologie Vol. 56, No. 04 ( 2018-04), p. 361-364
    In: Zeitschrift für Gastroenterologie, Georg Thieme Verlag KG, Vol. 56, No. 04 ( 2018-04), p. 361-364
    Abstract: Background In view of the increased risk of developing colorectal cancer (CRC) in individuals with affected first-degree relatives (FDRs), the German evidence-based S3 guideline recommends having the first screening colonoscopy early and then, following a normal examination, repeating it at least every 10 years. The aim of this analysis was to explore colonoscopy interval recommendations in clinical practice among individuals aged 〈  55 years with a familial risk of CRC. Methods We analyzed data from the FRIDA.Frankfurt study. Patients aged 40 – 54 years with at least 1 reported FDR with CRC (excluding suspected/known hereditary cancer syndromes) and a normal colonoscopy result (no findings) were included. Data on colonoscopist recommendations for intervals between subsequent colonoscopies were extracted from colonoscopy reports. Results Of 63 reports of normal colonoscopies, 20 (32 %) did not include a recommendation on when to undergo a further colonoscopy. Of 43 reports with recommendations, 40 (93 %) suggested an interval that was shorter than the recommended maximum interval in the guideline: 1 (2 %) was for a 3-year interval, 37 (86 %) were for 5-year intervals, and 2 (5 %) were for 8-year intervals. Conclusions Although the low number of cases limits generalizability, the results indicate that recommended intervals in clinical practice are considerably shorter than the recommended maximum interval in the guideline.
    Type of Medium: Online Resource
    ISSN: 0044-2771 , 1439-7803
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    Language: English
    Publisher: Georg Thieme Verlag KG
    Publication Date: 2018
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