In:
Journal of Law, Medicine & Ethics, Cambridge University Press (CUP), Vol. 47, No. 1 ( 2019), p. 88-96
Abstract:
Accessing BRCA1/2 data facilitates the detection of disease-associated variants, which is critical to informing clinical management of risks. BRCA1/2 data sharing is complex and many practices exist. We describe current BRCA1/2 data-sharing practices, in the United States and globally, and discuss obstacles and incentives to sharing, based on 28 interviews with personnel at U.S. and non-U.S. clinical laboratories and databases. Our examination of the BRCA1/2 data-sharing landscape demonstrates strong support for and robust sharing of BRCA1/2 data around the world, increasing global accesses to diverse data sets.
Type of Medium:
Online Resource
ISSN:
1073-1105
,
1748-720X
DOI:
10.1177/1073110519840487
Language:
English
Publisher:
Cambridge University Press (CUP)
Publication Date:
2019
detail.hit.zdb_id:
2052584-9
SSG:
2
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